Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

DennisB

Updated 6mo ago

My Cancer Treatment Journey: From Diagnosis to Remission

Just to introduce myself. I was diagnosed in 2010, Trisomy 12 unmutated. I was in watch and wait until 2019. Started having significant infections with a steeply declining hemoglobin count. WBC was 287,000 and hemoglobin was below 9 when I entered a clinical trial in 2020 combining Bendamustine (Light 3 cycles to reduce tumor load), rituximab and venetoclax. After 2nd round of Bendamustine, I developed Steven Johnson Syndrome and was hospitalized for 6 days. Fortunately, it wasn't too severe and I recovered pretty quickly. After several months of treatment (rituximab and venetoclax), I became neutopenic, then developed pneumonia with another hospital stay. I am now out of treatment, achieved MRD negative on early 2022, and am currently still in remission. Feeling good, and very happy that there are now multiple treatment options. I now fully expect to live a long l, healthy and happy life. Thankful for all my friends, family and those that provided support during treatment.

Can you help? Connect today

avatar

Binks1969

7mo

So happy for you!
avatar

Hibiscus52

7mo

I’m Trisomy 12 unmutated as well and am on my 2nd treatment . First treatment gave me a year and hopefully Acalabrutinib, 2nd year now, provided a fairly long term outcome.
avatar

3rivers

7mo

Trisomy 12 & unmutated, I was in a study in Nov 2015 to Mar 2016 of Bendamustine & Gazyva. No cll found in June bone marrow biopsy & MRI. Onc said I should achieve 5-7 years before needing treatment again. Currently in year 8. I told him I was shooting for 10 years and then we’ll discuss 😂
avatar

Anita_berg

6mo

Just to introduce myself. I was diagnosed in 2010, Trisomy 12 unmutated. I was in watch and wait until 2019. Started having significant infections with a steeply declining hemoglobin count. WBC was 287,000 and hemoglobin was below 9 when I entered a clinical trial in 2020 combining Bendamustine (Light 3 cycles to reduce tumor load), rituximab and venetoclax. After 2nd round of Bendamustine, I developed Steven Johnson Syndrome and was hospitalized for 6 days. Fortunately, it wasn't too severe and I recovered pretty quickly. After several months of treatment (rituximab and venetoclax), I became neutopenic, then developed pneumonia with another hospital stay. I am now out of treatment, achieved MRD negative on early 2022, and am currently still in remission. Feeling good, and very happy that there are now multiple treatment options. I now fully expect to live a long l, healthy and happy life. Thankful for all my friends, family and those that provided support during treatment.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc