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xajhx23

Updated 1y ago

Need advice and personal experiences with gastroparesis

Can anyone give me advice and personal experiences with gastroparesis? Recently diagnosed. I lost 50 pounds. I’m skin and bones. And just started meal replacements yesterday. I have no one to talk to and my doctors don’t know much about it.

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Donkeyfarts

1y

The first step is to switch from large meals to frequent small meals throughout the day, avoid fiber and adapt a low fodmap diet (search online there are a bunch of lists). There are motility meds that you can try, although you should weigh the pros vs cons because they can have some really nasty side effects. If you are still symptomatic after lifestyle changes a J tube (NJ, GJ or J are all options) for enteral feeding is next. There are also things like Botox in the sphincter that goes from your stomach to your intestine, as well as a gastric pacemaker to stimulate digestion. Personally those things I am not doing/won’t do because I have heard they have a very low success rate, but they are still an option.
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xajhx23

1y

I’ve been on reglan which didn’t do a thing. Then erythromycin which was okay it worked a percentage of the time but it’s an antibiotic so it’s temporary anyways. I’ve been living off of potato’s and applesauce for 6+ months. But just started an organic food meal replacement yesterday hoping to stop my weight loss.
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Teal100

1y

Try, eating smaller meals, medication, low fiber and fat, soft or liquid foods may be easier. If it doesn't stabilise then they will probably admitted you to try feeding tubs
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xajhx23

1y

I’ve been eating potato’s and applesauce for 6+ months. Started an organic meal replacement food yesterday. I’ve tried 2 medicines so far.
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xajhx23

1y

Yes I have a GI. And insurance doesn’t cover a dietician.
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Ginger5444

1mo

I don't think anyone know how to treat gastroparesis. They just hand you a paper and say read this. Navigating that with diabetes is difficult.
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Skittles22

1y

Hi there! I was recently diagnosed as well. I'm actually having the opposite problem, weight gain. I'm unsure why because I'm eating less than I used to due to pain and nausea. I do take rabeprazole twice daily, metoclopramide as needed, and ondansetron as needed. They do help a bit. However, medications help everyone in different ways. I hope that you find answers that work for you!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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