Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

zippi

Updated 1y ago

POTS and hEDS - Anyone Else Experience This?

hi everyone!!! so i have POTS and hEDS and i get this super weird feeling that nobody has been able to relate to so i’m wondering if anyone here gets it. sometimes i get this feeling in my knees / calves where it feels like my muscles have rug burn and then i ran a marathon with spikes in a cage around my legs. it’s extremely painful and i still don’t know what it is 😅

Can you help? Connect today

avatar

Entropyluna

2y

That sounds like it might be neuropathic pain. For me it feels like having electrical shocks running down my legs and arms, but a lot of people experience it as a burning or stabbing sensation. It's a common symptom with EDS
avatar

abbz

2y

yup yup yup. it’s like super bad pain that’s so bad like you can barely explain it! sometimes it feels like someone has a knife in the middle of my legs and are just spinning it around! lmk if you relate to this!!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc