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Teee

Updated 1y ago

Seeking Advice for POTS and Chronic Pain

Just wanting to seek some advice! I was diagnosed with pots about a year or so ago. I have met with a rheumatologist and I’m waiting to get blood work done currently. I have extremely bad pain in my knees, elbows, wrists and sides of my butt. I’ll have pins and needles all throughout my body (literally everywhere) and burning like sensations as well. Does this sound like fibro or does anyone experience this with their pots? I had a nerve study done on my wrists and arms and everything showed normal. TIA 💙

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blackberryjam

1y

i have fibro & pots & i experience this! it's from the fibro
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Teee

1y

it’s so frustrating! How do you manage it? Also, do you feel it in all parts of your body?? I even get it around my chest!
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wise

1y

yea that's fibro for you :/ especially the pain in your tfa. are you hypermobile? that would also contribute to the pain and paresthesia
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Teee

1y

not that I’m aware of! When I first got my pots diagnoses my neurologist had me do some bending stuff and he didn’t seem to be concerned!
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Red914

1y

I have this as well, my neurologist said it is neuropathy. She put me on gabapentin for migraines and it has helped with the neuropathy too. Seeing my chiropractor regularly helps too.
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Teee

1y

how was it diagnosed??

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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