I had a cystoscopy with hydrodistention on my bladder for interstitial cystitis, they burned my nerves so I don’t feel pain anymore. It has seemed to help.

Thanks for sharing your experience. Do you have any issues with sedation?

Was it a bladder fulguration procedure that burned the nerves?

No I personally didn’t and I believe so.

Thanks again for sharing

Omg I didn’t know that was a thing. Do the nerves grow back at all?

I've had IC since 2004, and low-dose amitriptyline and hydroxyzine worked pretty well for me for 6 years before I weaned off it. I did pelvic floor PT starting in 2018, and that didn't really help. The only thing that helped flares for me was drinking a ton of water. However, I had a vaginal birth 8 months ago and haven't had a flare since. Does that count as a treatment?

I wish. I can't take most of the meds typically used to treat IC, so I just don't do anything for it. It sucks.... But I've just been told I have to suck it up, basically. The only thing I CAN do are kegels and physical therapy.

So sorry to hear of your struggle. I’m in a similar boat where I don’t respond to most medication

I was diagnosed with a severe case of ulcerative interstitial cystitis in 1991. Over the years I have tried every medication available to treat it and none have brought lasting relief. I’m currently on a low dose of Medrol, a steroid. It has provided some pain relief, but has had no effect on frequency.

I am being treated for all the health issues that caused IC. Because let’s be real, chronic illness doesn’t magically happen. Be it, inflammation, hidden disease, etc. anyway they found a parasite in me, heavy metal poisoning, and lymes disease. It’s been a hard road but can definitely tell the difference. For the first time in a long time I can eat flare foods without triggering

QuinnS how did you find out about all the issues that caused it, what kind of tests did you go through? I didn’t know there was a known cause!

I heard of inner stem surgery where there’s like an implant that shocks your bladder and keeps you from peeing all the time and Be back to normal I’m currently about to be tested to see if I’m eligible It could be life changing if I am My cousin had it and got back off disability and got back to normal I also heard of Botox surgery but you have to make sure you qualify for that too It can make you be on a catheter for 6 months if it goes wrong I know if you have retention, I think you can’t get it Of course ask a specialist for a complete list! I’m learning too I hope you get better!!!❤️

Anonymous7 you asked how I found the issues that caused it. Nutritional Response Testing. Worked wonders. Been four week and I can have flare foods again and function like a normal human being! Definitely recommend it! The doctor I went to is called; Lipton Nutritional Health improvement center

QuinnS, thank you!!