819d
0
Had ACE level in March of 95. As of last week, ACE was 97. Symptoms are fatigue, joint and muscle pain. Lack of sleep due to joint pain. Two nodules less than a centimeter and tiny granuloma in lungs. other symptoms make me suspect fibromyalgia possibly: tender points. But I also have an elevated ANA which was 1:320 in September and March but as of last week was 1:640. Sjogrens was suspected but now ruled out. Has anyone been prescribed hydroxychloriquine for sarcoidosis? Has anyone been awarded SS Disability for sarcoidosis?
830d
0
hi! I just got diagnosed with neurosarcoidosis and I'm trying find out what to expect with the process of the disease.
833d
0
hi new here, my ? is my Sr ran my labs,my ACE ( Angiontensin Converting Enzyme) came in with a score of 82, which USUALLY means positive for Sarcoidosis.. however when they did my cat scan,it showed ABSOLUTELY NO INFLAMMATION OF ANY ORGANS,....SO my Dr is stumped... anybody else have this happen??,
844d
1
I’ve had Sarcoidosis for two years now I was on prednisone and then off the prednisone but recently in the last two months got back on it I feel out of breath all the time anybody else had any type of medication‘s that worked better than steroids so I’m not so out of breath
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
What is it?
Sarcoidosis is a type of disease that cause an abnormal tissue called granuloma to form in different organs throughout your body.
Learn moreAlike Wisdom
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
157 Alikes with Sarcoidosis
Learn from others
who are experiencing
Sarcoidosis.
4.7 Ratings