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Ailith

Updated 11mo ago

Adjusting to POTS and Seeking Disability

Hey, I was recently diagnosed with POTS and I’m having many problems. It’s so hard for me to do anything. Before I caught COVID, and it exasperated my POTS, I used to work 30 hours a week on top of college and taking care of my home. So my questions are: How did you adjust when your POTS suddenly worse/developed? What are some steps to get disability?

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E11iefant

2y

Get registered with your college’s disability center, find a work-from-home job online, look into getting a temporary handicap placard for your car, and most importantly remember that it’s ok to have bad days! The bad days only make the good ones that much better :)
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Emrys.the.warrior

2y

I’m with you. After I got Covid my Dysautonomia got way worse. I’m in the process for getting tested for POTS.
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hazyeclipse

2y

Following. I'm wondering the same thing, although I've never had COVID and the worsening has been gradual
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Dee22

2y

I was able to make my POTS so much better with walking. I had to start with very small amounts (and I had someone walk with me in the beginning), but I was able to build up and eventually stop taking all my medicines. At first, I was barely able to stand without my heart rate jumping to over 200. Now I’m walking 3-4 miles at a time with a much lower HR. My POTS does get worse when I am sick, so I will dial back the walking and take more break days, but the best thing you can do with POTS is keep moving. Rest makes my symptoms much worse. I hope you find some relief from your symptoms and please don’t give up!!
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SJP

2y

Please consult your physician before doing what I am about to suggest. POTS patients are typically recommended a minimum of 2 liters of water and 3,000-10,000 mg of salt per day. I increased my daily intake of both liquid and salt, and that seemed to help, especially with the temperature regulation. Additionally, I use a cane or a standing rollator to stay mobile but safe and supported. I use a finger pulse oximeter to check in and know what symptoms/feelings mean for me. I've also found slow, calm stretching while laying down to help, especially the stretch for sciatica.
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hnc1983

11mo

Mine was greatly exasperated after the 2nd covid vaccine.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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