Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

jemappelletony

Updated 1y ago

Assessing Disease Progression in Ehlers-Danlos Syndrome

What is known about the speed and degree of disease progression in Ehlers-Danlos Syndrome; how can I assess my personal disease progression?

Can you help? Connect today

avatar

Strawberry

3y

EDS is a progressive disease. The speed is different from one to the other. I recommend visiting your doctor regularly, it can help you estimate the progression.
avatar

Dolley

3y

I'm severe and mine is progressing fast. My mom isn't diagnosed but has minor symptoms and she's only had a little pain after working manual labor for 15 years. Unfortunately there is no set time-line. It took till surgery number 8 in 4 years to accept that I have severe eds lol. It really just depends on your body.
avatar

BossLady

2y

😥
avatar

Cai

2y

I have pretty severe EDS, mine was pretty placid as a kid and at like 17/18 it started to get bad and a few months before my 20th bday mine has started to progress really quickly. Not sure if any of this helps, but I would suggest just monitoring yours to make sure you know when it starts to get worse quicker

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc