For years we were trying pinpoint an autoimmune disorder, but were led to a connective tissue disorder that in a lot of ways acts similar to autoimmune. I was diagnosed with ehlers danlos syndrome. Maybe this could be a possibility for you?

I was told no I don't have that. I wish I did lol. I don't have any of the signs of it. I don't think I'll bother with genetic testing since it takes so long. I've had 3 doctors do movement tests on me and I failed each one that would of proved otherwise.

Awe I am sorry you are searching for an answer and diagnosis, that’s not easy at all. It sucks to have no answers. But, nevertheless I am glad it’s not eds for you, while I know it’s a “good” feeling to have some sort of answer I have not found much to help in dealing with ehlers danlos and related complications, other than knowing the “why”. I truly hope that you do find an answer though, and hopefully some kind of help or relief with that as well.