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PrincessPenelope's Post

PrincessPenelope

Updated 1y ago

Avoiding Disability Disclosure: How Do You Handle the Question?

Anyone else try to avoid telling others what your condition is for fear they will look it up and see the absolute worst case scenario? It’s clear I don’t walk like others and when asked I just say birth defect, No one but my family knows I have SB. How do you guys handle this question?

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Lego22

That’s a good question. I usually say that I have a few problems with my spine since birth. If they keep digging then I explain about the mechanism. I usually don’t use the name spina bifida

tweet1951

Hi I'm 27 yrs old and I was born a spinal bifida and I use to be very insecure about my condition but now I'm very comfortable with talking to people about my condition and my experiences

Rach2769

I very rarely say it by name and usually just describe the symptoms

Milaaa

It honestly depends on context of who im telling but i tend to be very open about my SB but when I was younger and started dating I definitely held off the topic from fear of being judged

Jonny78

If I trust em I tell em everything if I don't I just say I had a car accident

Hellokittyprincess

I tell ppl so they can be aware if i get hurt or need the hospital

Gemini43

I’m opened and honest

Tracks

When I tried talking to people and they haven’t continue the conversation I kind of figured they have already looking up my medical demons (lack of a better words) already. 😏

Gemini43

what did you say to them?

Musical_T

I used to dread having someone ask me, "Why do you walk like that?" When I was younger, I didn't have an answer to that question. Now that I do, I don't dread those kinds of questions anymore because it gives me an opportunity to be insightful.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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Avoiding Disability Disclosure: How Do You Handle the Question?