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Da_Wright_RN

Updated 1y ago

Benlysta for Lupus: Anyone else?

is anyone else on Benlysta for their lupus

Can you help? Connect today

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Aminor

2y

No.. immunosuppressants changed my immune system..allergic to everything .meds, soaps, etc. Be careful...
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Summer2022

2y

Yikes that was not good for me I was taking xeljanz but I stop because it might be lowering my kidney function I’ve been taking it for almost 2 years it’s either that or this new chemo infusion Actemra but I only had to sessions so doubtful it could be that but I swelled up so bad I ended up in the ER so I’m trying to play it safe right now until I know more I’ve been thru a list of infusions for my SLE it has been a nightmare but I try to stay hopeful 🙂
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purplewolf

2y

Yes, I have benlysta infusions once a month. It’s been wonderful for me. Allowed me to get off steroids and ensures I have way more good days.
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Aminor

2y

Actemra made you swell so you weren't passing urine and filled with fluid. Your kidneys weren't working and fluid remained in tissues. It's the new med....
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Kimcita

2y

I am. I take 500mg self-injection once a week

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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