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RavenFox

Updated 1y ago

Looking for Others with Biliary Atresia

I was born with biliary atresia, so they call it primary biliary cirrhosis. I guess my question is, are there any others out there with biliary atresia (PBC)?

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Micah

2y

I have PBC. It turned into cirrhosis, and I’m not a drinker. I’ve had to change my lifestyle, to prevent further damage and death.
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Micah

2y

I already started seeing a liver transplant specialist. I’m 43. PBC is awful.
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Marniemom

2y

I have had PBC about 15 years. Just now starting to have problems of itching and excessive fatigue. It’s getting difficult.
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NancyJane

2y

I have liver cirrhosis and am not be a be drinker but I did become an addict. Been sober for over 25 years now. Take a lot of naps. Watch what I eat. Legs swelll up so watch salt intake
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Micah

2y

Please go ahead and get a referral to a Hepatologist. That is a liver specialist. They know more of how to help than a regular family doctor.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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