Yeah a complete blood count will be a real help. That’s the one thing I’ve never been denied by a doctor 😂

oh no! how come they’re denying you? just because there’s no good reason for it?

Blood tests are just simple for them, but it’s always very difficult to get referrals to any specialist that would actually be beneficial. Healthcare system in my local area is really difficult to work with

Get your hormones, thyroid, vitamin D, test for diabetes and rheumatoid arthritis. I've gotten almost every test known to man, CT scan, MRI, colonoscopy, ekg, stress test, sleep studies, nerve test (carpal tunnel). Are you confident with your diagnoses?

over the past year i’ve been diagnosed with fibromyalgia and hypermobility and im waiting for my appointment with the geneticist to see where i am on the eds spectrum. im pretty confident on my diagnosis and just wanna make sure nothing else is wrong and how to go from here!

👍❤️

I had a doctor insist I had IBS and I argued with him, he read me his resume, and I never went back. PS, I don't have IBS.

did he come to that conclusion from bloodwork? cause i’m wondering if i have that as well and i don’t know much about it

I tried for many years to get doctors to run tests and take me seriously. I finally found out at 48 years old that I got her c from my ex, have chronic Lyme, and diabetes. Later I was also diagnosed with fibromyalgia, had endometriosis and got a complete hysterectomy and an inch and a half of my colon removed, then had a heart attack from my cholesterol being too high but my doctor thought it was pneumonia and had to have quadruple bypass surgery 2 years ago. Don't let anyone blow you off if you are at least 90% sure something is wrong. I was in my late 30s before things got too serious to cure.

I had DNA sequencing to confirm my eds diagnosis. I don’t think it’s always required, but I felt that it made the diagnosis more concrete

I don't think there's a blood test for IBS, irritable bowel syndrome seems self explanatory. I had monthly abdominal pain related to my period but hormones were normal and birth control made it worse. I had a CT scan where I had to drink this horrible stuff to show my digestion but had no symptoms of IBS. I joked for 3 years that I was allergic to my ovaries. It's a long story but eventually got my ovaries removed and pain was gone! In the meantime I'd developed fibromyalgia, that's another story.

thank you to everyone for sharing your stories with me! i’m only 18 and i’m very overweight so a lot of my symptoms get dismissed bc of my age and weight. i’m learning everyday how to advocate for myself more so thank you!

Yes, definitely be persistent. I've always diagnosed my issues before the doctor did. No one knows your body better than you. Good luck.

You can ask from your doctor for routine blood work to check that everything is alright. Usually its includes complete blood count and chemistry to see your liver and kidney functions and that you don't have any deficiencies. I try to do those tests once a year.