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Zedgirl's Post

Zedgirl

Updated 1y ago

Blue Sclera and hEDS: Indicator of cEDS?

I have blue sclera and am currently diagnosed with hEDS, I didn’t bring the up blue sclera with my doctor. I was wondering if this would be indicator of cEDS? Apparently blue sclera happens when type one collagen is affected 🤔 Does anyone else have hEDS with blue sclera 😅 Ps: yes I do have fairly stretchy skin but I don’t bruise extremely easily

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TreePerson

yeah it’s an indicator of many connective tissue disorders! Id mention it.

300gecs

Type one collagen is also affected in aEDS and cvEDS and other connective tissue disorders, so yeah you should probably mention it. Even if it turns out to be nothing there's no harm done by bringing it up.

abbz

i do! ❤️

paigeboleman

i’ve been diagnosed with hEDS as well as Osteogenesis Imperfecta at the same time. I was told the blue sclera were a result of the OI

VixenBelladonna

I’m pretty sure I have hEDS because the genetic test they gave me couldn’t identify a gene and I have blue sclera as well. It was a labcorp genetic test though, idk how accurate they are.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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Blue Sclera and hEDS: Indicator of cEDS?