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IAmTired247

5mo

It's made it harder for me to even find a job. I cannot work and no place is willing to accommodate me.
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Bre19

5mo

it's very difficult
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Beldon

5mo

I've tried to be more flexible but that's resulted in unstable finances and lack of routine. Often, I can disappear which has caused me to lose jobs because I'm unable to communicate. It's exhausting and gives me additional worries. I hope to find someone one day that can understand so I can work in a supportive environment and feel the need to pick up the phone when I have the bad days. Yet I understand that they have a business to run. It's a little like catch 22. I just feel like I'm getting all of the bad side.
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Bre19

5mo

I couldn't imagine how difficult it must be
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Annie726

5mo

I 100% understand.
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Scotsman22

5mo

I have not been in employment for just over 10yrs now, have tried to get a job but no success. I have spastic diplegia and malfrom syndrome
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Bre19

5mo

that must be difficult
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BoneDustWoman

5mo

My condition has made my work life so much harder. I pride myself on dependability, but now there are days when I just can't come to work, and my employer has not been very understanding or accommodating
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Bre19

5mo

I'm so sorry to hear that
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Bre19

5mo

I just fake it honestly that's all I learned to make sure people think I can work
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Stevie

5mo

Hi and good afternoon. It's sounds like some of you folks need some support out rech and a caseworker to know on some doors for some good help. Have any of you folks have tried the country Mental Health system that is a good start ok .
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Bre19

5mo

thank you for the information
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Velita

5mo

no career yet, but I've failed a few classes. even my favorites.
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Bre19

5mo

that must be difficult
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Overcomer

4mo

I had to stop working around 45/46 years old.
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Bre19

3mo

I couldn't imagine what that was like
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QuwnnLadyJ

4mo

Influenced by music it’s always there
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Bre19

3mo

nice
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ajar

3mo

I dropped out of college and can't find the will to go back 👍
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Bre19

3mo

that is difficult
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Mogame

3mo

as someone who has asd and a lot of mental health challenges at the start, it was really difficult cause no one didn't accommodate me. I have been a mental health and disability care giver and advocate for 11 years. So, 4 years ago, I stopped that, and now I have my own business as an advocate for asd aswell as I completed my double degree in ot and physiotherapy. I thought it was going to be really tough finding a place to accommodate me, but this place where I'm working, so accommodating from longer breaks, breaks in between my patients and more.. most of all, I'm glad that my patients understand as well.
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Faith1967

3mo

That's an amazing story! Have you thought of sharing your story in order to inspire others?
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Bre19

3mo

that is amazing
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Gwinea

3mo

Currently haven't finished school yet. What should be the last 2 years has taken alot longer, this year is my 4th. As my body limits me more, my goals change, like, I could still love the idea of a job but there's no practical way my body will cope. I'm 19 and have a worst case scenario job plan for if I can't leave the house much. Several drs have told me I should work in the medical field (I definitely know enough to) and whilst it does play to a strength I do worry it would feel like I never have a break, and just the physical side of things and my body being reliable to work like that. Right now just want to finish high school
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Bre19

3mo

that is understandable take it one day at a time
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Tracks

3mo

I don’t have CP, But I don’t have a job because of my SB and the stupido Government wages with how much I would get. so lucky you know I’m good with my parents and they help me through all this
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Bre19

3mo

that isn't great the government does suck but parents support is super good
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mercurialstarfish

3mo

i want to go into performing arts and im currently rehearsing my first 2 professional shows, but as i have endometriosis and pcos and typically am too ill for 2 days per cycle (irregular) my mum doesnt think it is realistic to pursue this. I am hoping that with understudies taking a max of 2 days off every 4-8 weeks shouldnt be a problem. Its really heartbreaking and unfair though to have people tell you its not realistic to pursue your dreams because of something you cannot control
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Bre19

3mo

that's very true unfortunately
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Suzen

3mo

I do not believe that for a couple days per cycle you shouldn’t pursue your dreams of performing. Those days might not fall on a day you work, or like you said an understudy could cover for you. They probably would be happy for the opportunity. Since you called your mother mum, I’m assuming you’re not in the US. I would think you should still have access to medications that are used here for pain. Do you have anything that is like the Americans with Disabilities Act? That says that an employer must give reasonably accommodations to a person with a chronic problem. Good luck to you, and go for it!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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