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Scout1996

Updated 1y ago

Struggling with Chronic Conditions: Seeking Advice

Hey all! My name is Scout. I am 25 and struggling with numerous chronic conditions. I am seeing a gastroenterologist soon and wanted to know what I should be checking about with them. I have IBS and my doctor thinks it is likely crohns related.

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karinad

2y

When are you seeing the GI? If you have at least 2 weeks, I would eliminate gluten for 2 weeks and then try it again before you see them to let them know how you reacted. They'll probably want to do an endoscopy, colonoscopy, or both. Ideally, try to find your triggers for IBS. I would also write a food journal for 4ish days, including weekend and weekday and include symptoms to bring in when you see them.
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Scout1996

2y

I have been gluten free for five years. I have celiac. So I think I’ll plan to eliminate other trigger foods just to see what happens!
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karinad

2y

Ahh gotcha. Eliminating dairy helped me
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karinad

2y

You might want to look into FODMAPS
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QueenOfCrohns

2y

I honestly wouldn’t eliminate anything until you see them because if you’re having inflammation, as painful as it may be, triggering foods may help it show up on scans. They may have you eliminate stuff once you see them. But if it is crohn’s, you’ll most likely have to start steroids. Food elimination alone won’t stop inflammation.
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Scout1996

2y

Good to know! I will wait and see what they find. Ugh. I’m so nervous. I’ve been diagnosed with IBS for years but I strongly suspect it’s something else. It’s so severe and there is so much inflammation in my body!!
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QueenOfCrohns

2y

I understand! I’ve been in the same boat before! Was originally diagnosed with IBS, and then Celiac, and then Crohn’s. It’s always scary getting a new diagnosis, but hopefully it’ll give you answers, and you can start on some meds & get some relief!!
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elo2002

2y

With IBS your doctor may recommend a low FODMAP diet. It’s hard for me to explain but if you google about it or watch YouTube they will provide a general idea of what it is

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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