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IllVictorian

Updated 1mo ago

Seeking Advice for Chronic Migraine and Health Issues

Hi, I just got the app. I'm not sure what to do. Had a constant migraine for months now. Unsteady and lightheaded when vertical. Easily short of breath. Seeing an eye Dr in two days to check for signs of intercranial hypertension. I do have hypertension when standing. Been miserable for many months and things keep getting worse. Pages of symptoms. Ling Covid suspected or Dysautonomia or IIH or... Idk really. it's a lot. would like to chat.

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Bovine_Obsessed

1mo

I have been struggling with the same thing even being hospitalized because they thought I was having seizures, but not just a weird potsy long migraine. I hope that you figure it out, be patient and do your best to take it easy otherwise your body will force you. Sadly few doctors know what to do with our more complex symptoms especially if there is more than one thing going on.
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IllVictorian

1mo

Hi there, you say potsy meaning POTS? I did the at home standing test, my heart rate and blood pressure both went up a lot. They put me on a BP med for now but haven't done a formal POTS test.
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Sewsew

3w

I have an IIH diagnosis. I'm happy to answer any questions you might have if that's helpful.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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