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TheBrat1981

Updated 4mo ago

Struggling with Chronic Pain and Medical Misdiagnosis

January pain getting worse legs burning relying on crutch Mid January agony in legs went to drs and referred to vascular. Massive chance up for vascular referral. Walking with 2 crutches  Ended up in hospital for night had scan on legs and sent home to go to vascular on 5th Feb. Went to vascular (launstan) told it wasn't vascular, consultant thought autoimmune. Referral to rheumatology.   Mid Feb struggling to walk with 2 crutches.  Ended up with being admitted to hospital. Rheumatology seen legs said it was dermatology because of skin issues inc painful ulcers. Told them the pain that is stopping me walking is inside. Wouldn't listen. Dermatology (Dr Whitlbey)did biopsy and rheumatology ran test. All came back normal seemingly yet on my NHS app lots of results are abnormal. Dermatology outpatient appointment told me wasn't anything to do with them go back to vascular and same with rheumatology. Was asked to attend meeting with dermatologist (over 30 Drs) they decided it was livedoid vasculitis but I needed to see vascular Dr first said they thought the problem was with the capillary veins not the main veins and arteries. Commander Parry (vascular) said never hear of it and as I have good blood flow through veins and arteries can't be that.  (Everything points towards it)  I feel it is that and MS which I've been saying I've had for many many years. I've been on the neurology waiting list since may 23.  District nurse Cristie did tests that indicate problems with the brain talking to my nerves. Expedited referral to neurology done by Dr on Friday 14/06. I'm not left not being able to do anything but sit in bed. I walk as far as my toilet with crutches and a lot of pain.  I have no life and am in complete agony 24/7

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The individual has been experiencing severe leg pain since January and has been referred to various specialists including vascular, rheumatology, and dermatology. Despite numerous tests and a biopsy, ...See More

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TheBrat1981

4mo

I've been struggling to walk for 6+ months and had multiple tests with different specialist and no one can diagnose me. I need help I've been to dermatology, rheumatology, vascular and waiting on neurology. No one are taking responsibility for what's wrong with my legs I've had biopsies and lots of blood tests I get told I'm a medical mystery every time but no one is finding a solution to my pain and the fact I can't walk. I'm 43 I had a heart attack in Jan 23 with stents fitted. I have heart failure and angina as well as diabetes and lots of other conditions. I spend all day laid in bed as I can't walk or have my legs down. I used to be extremely active before my heart problems. I struggle to walk with pain and weakness. I'm in tremendous pain 24/7 I have no life and am suicidal most days

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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