Go see a geneticist. Find a good Rheumatologist. Don't stop until someone listens to you.

I had to see a rheum to get diagnosed with EDS - I would recommend looking up the diagnostic sheet and filling it out yourself to bring in!

i've been to a rheumatologist as well as multiple other doctors. she commented on my hypermobile joints, tested me for lyme (positive), and told me i have "fibromyalgia-like symptoms", then proceeded to do absolutely nothing about any of that because i'm young and might grow out of it, and i should exercise. i've been very active my whole life

Ehlers-Danlos society's webpage has a great resource for finding EDS aware doctors in your area. That's how I found mine. Hope this helps!