"Hey! Sorry to hear about the tough time you're having. My hubby faced the same battle with CLL back in 2014. It was rough at the start, but things got better. it sounds like the initial treatment with Ibrutinib isn't hitting the mark for you, just like it happened with my husband. He had to switch to a combo of venetoclax and rituximab. The thing with Ibrutinib is, it's supposed to block a key enzyme, BTK, which feeds the CLL cells. But if it's not working, it could be because of a mutation making the CLL cells resistant. Hang in there, and let your doctor guide you through finding the best treatment path. Sending lots of positive vibes your way! "Hey! Sorry to hear about the tough time you're having. My hubby faced the same battle with CLL back in 2014. It was rough at the start, but things got better. it sounds like the initial treatment with Ibrutinib isn't hitting the mark for you, just like it happened with my husband. He had to switch to a combo of venetoclax and rituximab. The thing with Ibrutinib is, it's supposed to block a key enzyme, BTK, which feeds the CLL cells. But if it's not working, it could be because of a mutation making the CLL cells resistant. Hang in there, and let your doctor guide you through finding the best treatment path. Sending lots of positive vibes your way!

oh my, those nodular spots sound frustrating and worrying. From your post, I can imagine how unsettling it must be for you to wait for conclusive results. Fingers crossed that the new drug option will be a good fit for you! Take care, and keep us posted on your progress, okay? Much love

I hope the probe becomes successful and the doctors become clear on the next measure to take.. I am currently on watchful waiting and just joining my hands with yours.

From your post, it seems you’re staying on top of your treatment and I am glad you’re doing just that. Keep asking the right questions and stay positive.