Hi there! I have chronic migraine, immunodeficiency among other things. My sis has EDS and I’ve been told I probably do as well I’ve just been to busy with the migraines and immune therapy stuff. I’d love to know more about it. I’m 38 mom of one awesome rare disease kiddo. He’s a fighter! I hope your have a low or no pain day!

I have POTS but not sure about EDS

Hi! I have hEDS along with sero-neg RA, chronic headaches and past heart issues.

I have chronic migraines amongst many other things

I have EDS and POTS

I have been living with chronic migraines

I have EDS, I just had a bone fusion due to dislocations

I've got chronic migraines and POTS👋😁

I've got HEDS, getting testing for POTS and I suffer with PTSD. It's been a long hard road and it's hard to know what path to go on. I have constant dizzy episodes and migraines...it affects my cognitive function. Depression is quite bad and I'm feeling very isolated atm....

i have get migraines and it is suspected by doctors that i may have EDS!