Have you seen a neurologist for a full work up. I have EDS and neurological conditions that are common comorbities. Besides the dysautonomia/POTS. I think most of my pain is caused by my small fiber neuropathy. Also have demylinating disease of the central nervous system and cranial cervical instability CCI. Basically my body is attacking the myelin sheath of all my nerves in brain and spine. My health just keep getting worse. For my nerve pain only meds to help are gabapentins or Lyrica. Also for burning on fire pain in found applying ice helps