Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

IcecreamMoon

Updated 1y ago

Coping with Narcolepsy: Tips and Tricks

How do you personally cope with narcolepsy?

Can you help? Connect today

avatar

Scarlet9904

2y

Try to get a good nights sleep nap when I need to gave up my driving and stuff
avatar

Cedar

2y

I just try to give myself the most grace possible. I give myself breaks from my meds so I can rest if I really need to. I try to stick to routines as much as possible. Trying to build community with ppl who get it. I do a lot of affirmations and just try to meet myself where I am at. I know that’s probably not the answer you wanted. It’s been the most helpful for me thus far.
avatar

kthedragon

2y

I’m not sure but I do think sticking to a consistent routine is key. I’ve learned that it’s ok if you break your routine sometimes due to sleeping in too late or taking too long of a nap- you just get up and continue like you normally would as if you didn’t sleep at all :)
avatar

WallyWasTaken2

2y

Give myself a break. It's hard to let myself say no and that I can't do something because I'm too tired, or ask for accommodations from friends when planning an event together, because I *want* to do it. Just giving myself a lot of understanding, that I can't do everything everyone else can and that's okay.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc