My entire life revolves around my illness. I spend half the day on phone calls with doctors, pharmacies, and insurance; the other half is spent trying to keep myself well. It’s exhausting!

Would like to hear more about the good advice either if you two have gotten. I would love to be able to function normally in this lifetime.

after seeing numerous doctors, physical therapists and specialists. And without them offering much help with my condition. I have just learned how to adjust and accept my current state as my new normal. And my new normal has facilitated a deep bond with a family member of mines and that's something I wouldn't trade for perfect health. Mu advice to you is to accept that you aren't what you used to be and try to live your life as best as you can.