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Summer1980

Updated 2y ago

My daughter's POTS diagnosis: seeking advice

My daughter is 19 and is having fainting spells and chest tightness. After many trips to the ER by ambulance and many test including the table tilt test She is now diagnosed with POTS . She's prescribed a salt pill and compression stockings. Can anyone relate to this ? Any advice at all? This has been very scary! thank you

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TunaGoon

2y

✋yes. Just hydrate take the salt and don't overdo anything physically/ take lots of breaks. I take propranolol and it has helped a lot to keep my vitals stable if somewhat low. It took some time but I'm a lot more comfortable and managing things now. :)
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Summer1980

2y

thank you. She's also seeing a cardiologist, they wanna put a heart monitor on her for 30 days just to confirm that nothing else is going on. How many passing out episodes do you experience now vs before ?
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heatherjp

2y

Yes! I went through the same exact thing! Also get a blood pressure cuff (I got a wrist one) if you haven't already. The socks really do help tremendously too. I wish her luck! 🤗
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Summer1980

2y

I'm sorry I've been so busy and dealing with my own diagnosis too but I do appreciate all the feed back and I'll get back in touch with you guys later tomorrow. Thank u
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idk_182

4d

Take any medications prescribed however there is 1 form of treatment not commonly spoken about which is rather effective for a lot of people who especially get nauseous trying to drink enough and that’s iv fluid therapy. A doctor would prescribe you however many bags of saline they think you need per week for your condition then teach you how to attach them to yourself at home. A lot of doctors don’t bring this up but everyone I know that’s doing this has felt a lot better since starting it. If she doesn’t get any better definitely try insisting the doctors try that instead especially because a lot of cardiac medications have nasty side effects. I’m 18 so if she’s in need of anyone to talk to that gets what she’s going through tell her I’m here (:

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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