No useful advice, I'm afraid, but I'd love to chat as someone going through the same thing.

Doctors telling CFS patients to exercise when they can barely get through daily tasks makes me want to scream until I explode. So many doctors want exercise to be the cure for literally everything and anything 🙄🙄🙄 I don’t really have advice but I have CFS- got diagnosed almost a decade ago but didn’t really take it seriously until I get a confirmation diagnosis 2 years ago. It gets worse with stress, certain weather, and when life events happen. Did you have COVID? I’ve read some info (mostly anecdotal) about people with CFS having extreme fatigue after COVID.

I’m also struggling with work. I have a full time job and they want me to go to part time because of my symptoms. It will be impossible to manage on half my salary but I am too tired most days to really function. I have a lot to figure out with very few answers.

This sounds exactly the same as how I was for a long time. I ended up going into my doctor having the same talk while pretending like everything was fine because I was sick of repeating myself and getting the same unhelpful answers. One day when I went in though, there was a student doctor there and she started asking me questions about how I was feeling after she reviewed my file. She ended up telling me that I needed to get my vitamin d level checked and that it was not a part of the routine blood testing they do annually and to ask for a vitamin d 5 hydroxy test. I ended up getting tested and sure enough I was severely low on it and had been for years, which only led to worse and worse symptoms. I could hardly move at that point without my body aching and having a hard time even thinking straight (which was not me at all). It constantly felt as if I had run a marathon without doing anything. Anyways, I ended up doing a numerous amount of research on it for months to find out that it had the majority to do with all of my symptoms. Vitamin d has a receptor in every single cell in your body and every single inch of your body needs it. It also isn't even a vitamin it is a precursor to a HORMONE! When low it causes bone weaknes, fatigue, depression, anxiety, foggy brain, weight gain, insomnia (even though u are drained all day), qnd the list goes on!! Please ask to get tested as well because correcting it for me changed my life in a lot of ways (not every little thing but majority if the problems resolved). It did take awhile to get back in balance, but it was well worth the wait.