I don’t know if it’s a real thing, but I’m in a dislocation flare-up at the moment too. I don’t know which is worse…

I'm also in a dislocation flare up and it's driving me mad! I never understand what the trigger is either 🤷🏼‍♀️

Ive definitely started having more issues with all my bones and joints sliding around more than usual. I’m not sure how that works as a flare but I’ve definitely experienced it too 😭

Yes I have these. It seems like every symptom / group of symptoms I have can have flares, even if it isn’t ‘normal’ to have flares for these things.

It’s annoying, but I have to try and identity a flare as early on as possible to be able to attempt to get on top of it.

Yes, joint instability can flare up at random. This is one theory: I and many other female EDS patients have noticed that our joints become more lax during menstruation. I talked to my gynecologist about this and we set up a “continuous cycling” birth control regimen. I’ve noticed an overall lower frequency of subluxations!

Yes, I'll have a week or two where nothing wants to stay in place

Yes! Mine seem to happen more often when I have inflammation flare ups. It’s almost like the inflammation causes things in my body to push against or pull on each other causing dislocations.