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Unicorn_Arist

Updated 1y ago

Seeking Advice on Dealing with Fibromyalgia and Doctors

Hey guys, my sister found out she had fibromyalgia and I'm going to talk to my doctor about it as I have been seeing a doctor for years trying to figure out what's wrong with me. My question is, what is your experience with doctors and Fibromyalgia? I know some don't even believe in it.

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AI-generated answer based on the text from previous posts and comments

Some people have reported that their doctors dismissed their symptoms or did not believe in fibromyalgia. Others were diagnosed after seeing a rheumatologist who tested for other conditions first, suc...See More

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tiffiny

1y

My docs believe in it but most regular people don't. I'm in constant pain.
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LALindsey

1y

Do a lot of research and plan your speech before you go. Take an advocate with you and the billing code for a Fibromyalgia diagnosis. Not all of the PC providers are ignorant.
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Unicorn_Arist

1y

Thank you for the advice. I'll take my husband and I have been doing loads and loads of research. It's insane because I've been seeing 3 different doctors for 3 different things and they can't figure out what's wrong with me. Now after reading all about it, it explains all 3 of those things and so much more.
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blondie93

1y

I went in with a full list of symptoms stating I thought it was fibromyalgia. They did the usual let's run blood work to rule out other things, blood showed nothing so it was a pretty quick diagnosis for me. Ask for the fibro pressure point test too.
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Smiley.96

1y

In my experience, Doctors don't like to diagnose it straight away because if they do it's hard from them to get the ok to do other tests, they usually try a few other tests and things first to rule othet things out before giving the diagnose. This is because as soon as you're diagnosed with Fibromyalgia, any problem you got to the Dr with afterwards, they usually brush it off as Fibromyalgia. x
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Unicorn_Arist

1y

Well, I've been seeing a rheumatologist for years and they can't figure out what's wrong. I've tried Humara with Methotrexate, Diclofenac, Sulfasalazine... They've basically been experimenting. And since finding out my sister has it and it's genetic, I'm hoping it will make things easier to figure out.
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55isMe

1y

i have found the same. My latest condition has been POTS, but really are so closely related (prior was chronic fatigue blended into fibro). It was easily and consistently repeatable that standing less than a couple minutes brought on the distress. But yes, cardiologist did lots of tests to try to find the primary cause).
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faerywyrm

1y

My doctor didn't believe at first. After all kinds of tests, including the pressurepoint test, she sent me to a rheumatologist who diagnosed the fibromyalgia. One of the first things he did was to educate my gp on fibromyalgia. He's constantly keeping up on the latest developments in fibromyalgia research and works with me to try to find treatments that work for me. After my gp retired, I got a new one who not only believes in fibromyalgia but actively tracks the progression of all of my chronic conditions.
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Unicorn_Arist

1y

I love that so much for you! Hopefully I can get some answers
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Koala35fm

1y

Ask for a referral to a rheumatologist. If your doctor doesn’t believe in Fibro, go to another doctor.
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Unicorn_Arist

1y

I think that's what I'll do.
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Possum8910

1y

Honestly, my experience was awful. The doctor that diagnosed me wasn't very nice as a whole but when I asked, "ok so what's the game plan? What steps can I take to manage it?", she said, "well I don't know because I don't believe in fibromyalgia. And I'm nit giving you pain pills." I didn't want pain pills and never asked for them. Other doctors I've seen sense have been understanding and helped with medications and PT. But I do have other chronic pain issues too. It is different for each person, just make sure you have a doctor that's not going to treat you badly.
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emlah

1y

Fibromyalgia can be quite difficult to diagnose. Took me 2 years of exhaustion, 10 years of back pain and then all over pain for me to be diagnosed. Fibro is diagnosed when all tests come back negative and you've had pain in all 4 quadrants of the body for at least 6 months. At least that's what the rheumatologist told me (:
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Doglover25006

1y

I have found nurse practitioners to be more beneficial than the docs they work under. They have more time to listen and work through the process of ruling out other possible diagnoses then the trial and error of management for fibro.
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thrillsnchills

3mo

I would ask for a referral to a rheumatologist. My experience is that they blow it off.
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Jada2001

3mo

👍 And I find that statement to be factual as well a Rheumatologist will not believe that you have Fibromyalgia as when I went to see one she totally dismissed me and felt as thought there wasn't anything wrong with me after doing blood work to see if it was Rheumatoid Arthritis!! 🤷🏼‍♀️🤦🏼‍♀️🤦🏼‍♀️ Seriously 😳... Okay well that was in 2014 and I e gone back to my Primary Care Physician as well as started seeing the same Neurologist who treated my Brother who passed in 2018 with many more issues due to a major Car wreck and 2 motorcycle wrecks , but I started seeing him cause he treated my brother for so many years & I felt like I could trust him with my health since he took good care of my brother. And I do have Fibromyalgia as well as I have POTS and was just diagnosed with that this last March and the Drs missed that after I was sick for 6 months passing out and blood pressure being in the 70's over 50's constantly ! After being in the Hospital a week that idiot Dr wanted to say well it was Covid and I was malnourished 😳🤣😂🤣🤣🤣

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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