Most people don’t even ask but I just stop overthinking and go with it. If they ask they ask if they don’t they don’t. It does take a toll on my self esteem

I found a great person that doesn’t put me down because of my skin condition. They are out there!

I feel this. It is SO hard to feel sexy when you have HS. Thankfully my man was willing to educate himself about hs (it helps that he used to be an emt). But I know most people would automatically associate it with things like stds or poor hygiene. Find somebody who is willing to listen and learn about your condition- bc once they understand what it is, they should be able to look past it & avoid embarrassing you over it. anybody who can't do that doesn't deserve your sexy times anyways.

do you guys have really bad scars? I’ve been scarring since I was like 13 and they’re all deep purple and I have some scar tissue lumps

My scars are petty gnarly

I've worried about this too. I want to try new sexual partners but I'm just afraid to be seen or touched especially my breasts which is where most of my flares still happen.

Yeah I’ve never been able to trust someone enough to be intimate with them bc of my scars. Casual hookups aren’t even an option in my mind because I don’t know how I would even explain it

I’m lucky enough to have found someone that doesn’t care about the scars and sores. He is understanding when I have a flare and don’t want to “participate in activities”. He will also clean and change the bandages on the ones I can’t reach. Good luck!!

Honestly, as a woman with HS scars and flare ups in the groin area, I have never had a bad sexual interaction regarding my HS. Most men don't mind or don't even notice. If they do notice, they typically don't ask. I have found that just being open about it and educating them is enough. This is coming from someone who has had many casual partners. Don't stress!