Hey, from what I understand - several years after surgery there can be a recurrence of the problem. If you are unable to return to the same doctor who performed the surgery, it may be possible to consult another doctor. In the meantime I really recommend performing pelvic floor physiotherapy, it helped me a lot!

They think it’s apart of my spinal bifida its from a build up of fluid in my back

Hmm. I had to start wearing incontinence briefs when I was 22. Not the underwear, mind, but the full briefs. As for me, my incontinence was never fully understood. They could never find a reason. I just couldn't hold it very long.