Hi! I was diagnosed with POTS at 18. A little over 2 years ago. I had one week where i was miserable. I was usually able to control my symptoms well. But i happened to be on my period that week. I was so so dizzy. My head head felt like a ringing gong. Just vibrating back and forth. I went to the ER in 3 out 5 days for fluids. The fluids helped. After that i began getting fluids once a week for about 3 months and started birth control. Birth control was a life saver! I have not gotten IV fluids in over a year!

That definitely sounds like POTS to me! I just found out recently that there’s many different subcategories of POTS, and each one presents differently. I’d recommend trying to find a dysautonomia specialist to narrow down what category it could be, and hopefully they’ll be able to help out! I’m on a waiting list for a few different places, but the best one I’ve found so far is the Vanderbilt Dysautonomia center. There’s also the chance that you could have a comorbidity making the POTS worse. In my case, I have EDS which means my blood vessels are too stretchy which makes my blood pool in my legs even more than with just POTS. I hope you find some answers, let me know if there’s anything I can help with! 💛

I've also had some issues with vertigo and not really being able to differentiate up from down. My POTS is part of a different condition, so these symptoms went away with medication that might not work for you. Do you have any numbness in your hands or feet?