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A424

Updated 1y ago

Diagnosed with Sjögren’s syndrome: Seeking Advice

How did you get diagnosed with Sjögren’s syndrome? I’ve had dry, peeling lips for about 8 years now and very dry eyes and mouth for 2 years which is getting worse. My jaw joint also aches often. I know that i’m hydrated and it’s not due to medication. I’m going in for a blood test soon to check for antibodies. If this comes back negative I don’t think they will look into it anymore, which means I’ll have no answer for my symptoms.

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Bubba_Jones

1y

I did a blood test which unexpectedly turned up antibodies. They did another to be sure, and then a lip biopsy because I have BIZARRE symptoms. Not a normal presentation but all tests came back positive
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Sapnu

1y

Get the lip biopsy. My rheumatologist explained thats the only way to verify sjogrens. My blood tests said i was negative for sjogrens- this was incorrect.
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Bubba_Jones

1y

My blood test and lip biopsy were both positive

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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