Diagnosed with Sjögren’s syndrome: Seeking Advice

How did you get diagnosed with Sjögren’s syndrome? I’ve had dry, peeling lips for about 8 years now and very dry eyes and mouth for 2 years which is getting worse. My jaw joint also aches often. I know that i’m hydrated and it’s not due to medication. I’m going in for a blood test soon to check for antibodies. If this comes back negative I don’t think they will look into it anymore, which means I’ll have no answer for my symptoms.

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Bubba_Jones

1y ago

I did a blood test which unexpectedly turned up antibodies. They did another to be sure, and then a lip biopsy because I have BIZARRE symptoms. Not a normal presentation but all tests came back positive

Sapnu

10mo ago

Get the lip biopsy. My rheumatologist explained thats the only way to verify sjogrens. My blood tests said i was negative for sjogrens- this was incorrect.

Bubba_Jones

10mo ago

My blood test and lip biopsy were both positive

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