Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Macbeth

Updated 3mo ago

Seeking Diagnosis for POTS and EDS - Any Tips?

Hi POTS peoples! How many of you also have been diagnosed with EDS? And if you were, how did you get that diagnosed? I’m currently seeking a diagnosis, and I’ve found it’s very common to have both

Can you help? Connect today

Your Alikes say
AI-generated answer based on the text from previous posts and comments

Some individuals have shared their experiences of being diagnosed with both POTS and EDS. One person was unofficially diagnosed by a physical therapist many years ago but wasn't able to get officially...See More

avatar

_opaline_

3mo

Hi, I have both as well as MCAS, it’s very common to have all three together as well as some of the other comorbidities like migraines, GI issues, and interestingly enough even mental health issues and neurodivergence
avatar

Macbeth

3mo

that is interesting, my sister has mcas and pots as well, and we think Eds. I also have a ton of GI issues and just had an endoscopy and everything
avatar

Watermelon2003

3mo

I have EDS and POTS lovely. I was diagnosed by rheumatology and gene testing. Big hugs and hope you get sorted soon sweetheart x

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc