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AlikeTeam ✅

What’s the biggest communication challenge with your doctor?

Can you help? Connect today

Zebrabri

They don't believe me. Refuse to test for things. Won't provide appropriate treatment.

Coty

welcome to the scam that is western medicine…..pharma wants you broken so they can give you a doctor and some pills…..neither of which were put in place to actually care or help

G.S.Lisa

I’m having similar problems with one of my meds. You might ask your psychiatrist about trans-magnetic stimulation. It’s non-invasive. Treatment is usually about 45 minutes, three times a week for four to six weeks. It’s slightly unpleasant but not painful.

colourfulburrito

I'm really surprised so many other people have the problem of not being believed.

Marjo

what currently is helping you cope?

PrettyPolar2

its weird because when I had insurance I got so many hospital bills and people didn't really care or listen in fancy facilities, but I quit my job and went back to school and I have gotten amazing care from Evara Health. The first location I went to the doctor was really weird but I went to a different location and they were so persistent about caring properly and listening well.

Bre19

I'm so sorry

Ganou

11mo

sooo true 🙌

Jack2021

My only communication problem with my doctor is that he thinks I’m a lost cause 😔

TheUglyDuckling

don’t believe him if that’s true. Use affirmations and believe in yourself.

Marjo

change doctors!

Bre19

that's not cool of him to say

Costanza

My biggest communication challenge with my doc is trying to explain to him that I prefer natural treatments while he persistently claims I need pharmaceuticals

Denotchka

Get a second opinion if you need to.Or look up the natural stuff and give it to him and put it this way: “Here expand your medical knowledge base. Challenge yourself and grow in your professional understanding.”

Marjo

🙌DO seem to understand the Holistic approach over the AMA doctors.

Natalieisameme

My biggest challenge is that they fail to tell me what’s wrong (I have to look in the doctors visit notes to get an answer), they won’t take me seriously, and they pretend it will take time when as time goes on my illness progresses and I become sicker. I am able to ask for testing and get it done so for that I am thankful, but in that way I have to do my own research and become my own doctor :/

Bre19

oh no that's not easy

Fiesty

A lot of doctors think they know what they're talking about. The reality is, no one knows everything. The medical field is always changing. I don't know what the requirements are for doctors keeping up to date on their knowledge, but I'm sure it has to be something. Every doctor has their specialties. It's honestly all about finding a doctor that specializes in what you need. I wish that doctors would be honest when they don't know how to handle something. Only one of my doctors has ever been honest with me. She told me what it was about my symptoms that she didn't understand, and then I was able to go and find someone who specializes in that area, and now I have answers.

colourfulburrito

that's really good that your doctor was upfront about it and that you were able to go and seek help elsewhere. I wish more doctors could be like that

Marjo

in todays world we all need an understanding Primary doctor. Our Primary should refer you to the specialists you need to see. He is the keeper of all your records and you should have an open and comfortable relationship with this doctor. Reading patient reviews are extremely helpful in choosing a prospective Primary Doctor!

smol_hippo

they think they know my own body better than i do

Bean69

So True !!!! Yet Most Of Us Know Our Own Body Better Than Any Doctor

Bre19

so unfortunately true

Mark88

I feel he doesn't see the emotional aspects of my illnesses and it makes our communication really shallow.

Bre19

I'm so sorry

EmmaB

I think that the biggest challenge is to make them understand that sometimes we just need to feel heard and taken care of

BossLady

Sometimes having them not listen to me or speaking to me like I am dumb or something!

yumzy199725

yeah your so right they speak to us like were stupid and they don't talk to us they talk at us they aren't listening to anything we say what's the point of asking us any questions they tell us how we feel anyway! 😔

Cai

I feel like I can’t ask for treatments for fear of seeming like I act “smarter than them” I don’t feel like I’m given room for my thoughts and opinions to be accounted for

Bre19

oh geez

QueenOfAwkward

Honestly, I have amazing Dr's my main issue is when I told my primary Dr I have APAS he told me I didn't. I told him the ither Dr he sent me to said that's what I have and he should reach out to them. After that he was more considerate with what meds he would put me on.

Marjo

it’s so important to speak out, advocate for what you feel are your needs! Don’t hold back; the more you share and show your emotions/ feelings, the better they can help you. They can’t read your mind!!

Rosie_Posey

They don’t understand chronic illness because they’ve never been this kind of sick. How can they understand what I need when they have no concept how I feel

Bre19

oh geez

SaffronAcr

I have a lot to say about the primary doctor I am now seeing because I lost my job and insurance I am now on soonercare. I have to get all new physicians. My symptoms were so bad that I should have gone to the hospital. But I don’t want to and I have no idea how to get it. I am not going to get to ambulance. Nope I was able to get a appointment with a new doctor in the morning. If I survive, I will go.

Bre19

oh no

Maryssa

They just push medication on you. They don’t listen. They don’t know what we’re going through. They have no clue. They aren’t their to help but to push pharmaceutical medication on you. It’s all about money. They don’t care about your health. I want to try St. John’s wort.

Bre19

true

UnluckyUnicorn

I hate the “you look fine” I get from doctors. Like yes, I can communicate my pain, explain my symptoms, want tests to be done, schedule appointments, and beg for help all while being in chronic pain and feeling like crap. The fact that they can’t begin to comprehend that, honestly hurts.

Coty

right? That’s what baffles me

Bre19

ugh

Jadie

Im 24 with bipolar disorder type one. It started at age 13 to 14. Seen maybe over fifteen different therapists and psychiatrists and tried around 20 medications. But my biggest issue was only getting worse. Not a single doctor I met asked me about any signs of mania or mood cycling. They were only concerned with depression and anxiety. And i didnt even get an actual diagnosis without pleading my therapist to take me seriously for six months even though she said herself ‘I see you flip episodes in front of me all the time!” In action and lack of proper communication in examinations and general service almost killed me. This is not at all uncommon. Also seeking medical attention while autistic feels like Im walking into a trap due to doctors being at the ready to ‘disprove’ a patient and will take all my body language as lies.

Bre19

geez

uriboo

it felt like my doctors didnt really believe me until i had 10 seizures in their office in about an hour, 3 of them being right in front of her. the way she began talking changed from 'well maybe we can do this' to 'we need to do this asap'

Bre19

that's not good

Crow

Young≠sick to them My RF came back fine and no signs of autoimmune disorders, so i must be fine!! But i did some reading. My blood disorder from birth, beta thal, that i got re-evaluated for, can cause arthritis 🤭🤭🤭😮😮!!!! The geneticist never told me that and neither did the rheumatologist. I got positive factors for parvovirus too sometime in the past apparently, and that can cause viral arthritis in a way too, mildly at least. Idek when i got this so i cant even say on this. One things for sure, im fatigued and my joints are screaming; my blood disorder causes a buildup of iron leading to arthritis and other factors blah blah but no one wants to tell me that or help me figure it out. I could also have thicker marrow too i have to reread, bur that’s something you should tell a patient, so they know screenings will need to be done to ensure all is well. Just gonna let me walk out all fine n dandy huh

ICwarrior

Facts

Monie

Looking at me as though I’m playing Dr to myself and telling him how to do his job. Iv been on antidepressants for 25 + years I do know my own body and when somethings wrong or not working right. I just suggest.

Bre19

oh geez

alexpm7

I am a medical interpreter, I work with doctors all day translating what they say to their Spanish speaking patients. As a society, the expectations we have on Doctors performances (versus how they actually perform) are at a ridiculous high. It applies to any person at any career, after 6 or 7 hours of non stop patients (some of the Drs I work with have 7 or more patients every hour) your performance is not going to be the same as when you started working. You can't be as invested in your last patient of the day like you were with the first one, that doesn't make sense, even if they're paid very well or not at all, you're not going to give the same quality care to everyone. Nobody has that amount of mental stamina, why are we pretending that going to medical school turns you into a super human? 🤨 Also, the way medicine is being taught right now indicates that the patients are inferior to doctors in knowledge, but that's just stuff that you can read in a book. We're all different and the only ones that actually know their own bodies is ourselves. As long as the health care system stays broken, nothing will change. We need patients instructing their doctors about their own bodies, and we need basic medical education as patients to be able to evaluate ourselves and be trusted as individuals that have knowledge on their own bodies.

oblivesce

A lot of the above answers, but largely for me it's that they don't really tend to put the separate pieces of my health journey together. There's not enough time spent with them to get them to see "the full picture"

Bre19

yep

Jellybean001

Getting them to believe me so that I can get tested for something. Somehow even though (most of) my hunches have been right, and something odd shows up when we do test for what I’m begging for, she still doesn’t really understand the severity.

Bre19

oh geez

Nana1124

My doctor and I have discussed switching up my pain medication from one to two different meds that are basically the same as the one I'm already taking. It seems pointless to even go that route because it doesn't sound like it's going to be any better than what I'm doing now.

Bre19

oh no

kkiqra

Mine literally won’t believe that my ocd is as bad as I say it is. It affects every aspect of my life and I’m constantly overwhelmed but she won’t listen. Just because I’m not depressed, that means I don’t have ocd anymore??

Bre19

oh no

Mcfishes

If you’re having trouble with a doctor who doesn’t understand you, I would highly recommend looking into naturopathic or functional medicine! They’re the only doctors I’ve ever felt truly understood by.

Bre19

interesting

Dhadhu

One word. Gaslighting!!! I'm a nurse and even though I don't know everything about every condition. I at least know myself and my body and mind. I will research and study up on my problems and my symptoms till there is nothing left to study. So I hate when a doctor dismisses my symptoms saying I'm making it up or I don't know what I'm talking about or they know better. Noone knows me better than me.

Bre19

true

Pinky20201

They told me my IBS was all in my head and I was faking but they did a colonoscopy and found out I had IBS at first they didn’t believe me but now they do and it’s been hard but I hope I get a gi doctor because my symptoms aren’t getting better

lilly109876

they found out you had IBS through the colonoscopy?? My doctor didn’t find anything in my colonoscopy and diagnosed me with IBS because he found nothing

Bre19

oh geez

Pinky20201

New gi doctor

Jea

when it comes to chronic pain i’m left always feeling like i must be making things up since i’m always brushed off so quickly

Bre19

that is not cool

Poggers

Mine is also T1D and understands everything and helps me with the stress and makes me feel better, I’m so lucky ❤️

Bre19

that's good

RosesForMyDear

With my regular doctor? I have legit health concerns and she keeps just brushing it off as me being fat. Like I'm gaining weight because of my birth control and my med. But I have a legit concern about me being freezing all the time and not maintaining body heat and being lethargic and she's just like "maybe stop eating so much fatty let's put you on a diet!" even though I like... Have been doing the intermittent fasting diet since I was in the 7th grade lol.

Bre19

oh no that's not good

grapecat

my problem is finding a doctor at all. doctors here won’t be able to see me for at least 4 months because my debilitating lymph node pain isn’t serious enough 😥

Bre19

oh no

RionWilde

I have trouble making my appointments, and they don't presue another appointment or return my calls when I try to schedule. I know it's not my fault, but I know a lot of people who find that discouraging, myself included. I used to have a really great therapist who checked up on me often, she cared.

Bre19

felt

Taybor

they just blame any issues i bring up to them on my weight and i know my weight can cause some issues but this is my body and i know my weight isnt the issue here i can feel it but they dont want to run tests or anything until i try to lose weight

Karrieanne73

absolutely !!!!! I hate that. And then they tell you to exercise but with my fibro and RA and knee and back problems I can only do minimum effort exercise not the kind they are talking about … and my weight is from hypothyroidism. I don’t eat that much due to having ibs and stomachs issues so it hurts to eat so I’ve just I guess over time stopped eating. Sometimes the only reason I eat is because my fiancé cooks the meals. Drs need to start getting educated

Bre19

that's not a good doctor

Nana1124

@Natalieisameme: all the more reason to become your own best advocate, nobody knows you better than you do! Empower yourself to be an advocate for yourself and write down things you want answered or better explained, and in layman's terms so you understand what he's saying to you. Another idea is to have your doctor's medical assistant explain things to you from your chart, especially regarding your current visit. He/she is your best chance at getting your questions answered, especially if your doctor is only with you for a limited time and may not have enough time to explain what they're telling you in simpler terms. Take advantage of any amount of time the M.A. is in the exam room with you. ALSO take a few minutes to talk with the M.A and express or explain what it is that you would like to hear from your doctor without having to spend an inordinate amount of time (which he/she has precious little of) and make sure they answer or explain your questions and/or concerns in what limited time you're going to have with your doctor. I hope this helps you.

Lovecrafty

I always panic and forget all the things I need to talk about.

Karrieanne73

same 🤗

Bre19

same

Andi_F

Unless it shows up on an xray they don't believe me. I've had broken bones before & had them not believe me until they've seen the xray.

Bre19

oh geez

Em0113

They just brush off my pain/legitimate concerns and blame it on me not drinking enough water or my chronic illness. So they just up my meds and move along

Bre19

how rude of them

Ugo.Iba

Not having my trans status be related to every tiny fucking thing.

Disorganic

I don't trust any of my doctors enough to really communicate effectively with them because of childhood medical trauma. My pediatricians did not handle my care correctly and I repeatedly watched ER doctors not handle my parent's care correctly. I fear that if I say "the wrong thing" I'll be labeled a hypochondriac or drug-seeking because it's happened to me before and I've watched it happen to my loved ones.

Disorganic

Also, I'm often extremely embarrassed about medical issues and I've had a lot of doctors be extremely condescending and dismissive, which truly doesn't help me feel safe being honest with them, especially about things I already feel shame about.

TheDragon

They don't think of diet or alternative medicine as treatment

InsidiousAnomaly

they do treat fat people that diet is treatment and the cause of their problems.

healthybean

literally hated this one psychologist who talked to me for 5 hours and ended up misdiagnosing me with MDD even though i literally told her i knew i didn't have that

OuchiePrincess

How many doctors I have that don’t communicate with one another, despite having my records. So I have to be the one to know about all the side effects and whether or not I have meds that do the same thing

Karrieanne73

I’m kinda lucky my dr mostly seem to talk to each outher but my therapist suggested that I get pallative care . She said most people think it’s just for people that are dying but it’s also for patients that have numerous doctors and they are like a main one and makes sure they are all connected . I’m really thinking about getting one.

seatune

shrugs my mental problems off because i’m young

Bre19

I hate that

susu

im really grateful to have an understanding doctor but i know it can be hard to get doctors to believe you!!! :( it’s probably because they see so many patients, alot of whom are attention seekers and drug addicts who want to get more medication that they do not need which makes doctors more critical of people expressing their real and valid concerns!!!!! what you guys are going through with your doctors sounds horrible, medical gaslighting is awful and i hope you all get the help and justice you deserve <3

Bre19

glad to hear that

quinn1221

they somehow find ways to f up my blood tests so i never get ahold of the results.

Melcore

That they don’t listen, and they don’t understand what I’m telling them.

Bre19

that's very frustrating

Luberomi

It's funny because I have my neurologist, and my primary care doctor prescribed me something for the tingling sensation.

chronic.vic

Me trying to emphasize how bad I feel while he keeps telling me to live my life

Bre19

geez

Sleepho

My doctor has known me since I was a baby, and is the doctor for both of my parents as well. You’d think this would mean they’d know me better, but instead they just assume I’m just like my parents and ignore my concerns about my health to ask me for the fifth time if I’m sure I haven’t done drugs. I could have gotten my POTs diagnosis 8 years ago if they had listened to me, and because I’m still technically a kid, when I bring up that something may be the issue, they always try to see if it’s everything BUT what i brought up first. The icing on the cake is that I have gotten none of my diagnosis’s from this doctor, because they don’t pay attention to me. I got a POTs and CFS diagnosis from a neurologist

Florence

Literally was sobbing in front of my doctor today because she dismisses me so much. Reading all of these comments makes me only want to fight for myself harder. ❤️ 🤗

Bre19

oh no

antikarma

i’m a college student with cancer & it feels like my doctors forget about this and never mention how i’m gonna have to adjust my school life to properly go through treatment

Bre19

oh geez

Jadie

They rather sit there and dehumanize me, make rash diagnosis without my awareness, and overall speak over me so I cant even explain my symptoms without being called shitty things. They only see my body not me the person and it has caused severe trauma. Doctors (in my case anyway) usually dont want to try because Im not an easy patient.

Camilo_Madrigal

It appears that whoever ago to can't help. They need to send me somewhere else and they need to get approval from someone else and no one can actually do anything

Izzybee

They don’t believe me and they won’t listen to me! My PCP gave me a referral for a pain specialist due to chronic pain and when I told him my symptoms he said I was being over dramatic and I’m lying because I’m too young to be in this much pain, I saw a rheumatologist and when I went back with what that dr said he said I was lying. I don’t know what to do and I feel like I’m being made out to be a hypochondriac

Samsambinks

They blame everything on my weight but I gained weight because of my health issues I was thin when they first started

Journey

Being dismissed for my weight and not being believed...I've told my doctor I think my weight gain/diabetes is connected to PCOS and she basically tells me it's my diet...I eat extremely healthy and mostly vegetarian but she won't look beyond that narrative. I had an integrative doctor and she was awesome, but she left the practice, I think because her way of doing things didn't fit with their "get them in and out" mentality. I feel like my options are limited bc I live rurally. But hearing other people's experiences here I feel empowered to try again and be my own advocate. Thank you everybody and good luck on your path!

bedbug

they don't listen to me

LunaJess

Being dismissed by my neurologist for so long until I took my father with me to my appointments because I was so exhausted and in pain and desperate each appointment becomes a matter of my quality if life. Suddenly the medication and treatments were available to me. They looked at him and talked to him not me even though I am an adult woman. Seems like either my young age made them not take my suffering seriously or it was sex discrimination.

Thasia

I have had to become very versed in medical jargon because when my blood tests come back I have to look up what it means. What normal is, what low is and what high is. If something is low or high what exactly that means and if it’s anything to worry about. Twice this week I was told my bloodwork looked good, knowing full well that it isn’t good! I am so mad, I called them on it and one doctor changed her tune and she said well yeah that does need more testing because of your symptoms. Ya think?! Be your own advocate because the doctors don’t have your best interest anymore.

Karrieanne73

I always check my lab tests and google them . Becuase I don’t know how many times I too have been told everything is all right but my tests showed something different . I’m slowly learning to advocate for myself

Avaria

My biggest struggle are doctors who don’t consider specific illnesses symptoms in relation to racial differences or new case studies and will deny you when you ask for tests to be done, because you are “displaying all the symptoms” then I have to bring up how the symptoms aren’t apparent in my particular race, then they agree with me. Then they run the test and sure enough it was what I thought it was. Just frustrating when it’s so easy for them to just order a test to rule out something, but they just go by the textbook standard check list of symptoms. And it feels like I constantly have to do research ahead of time and gain a lot of knowledge to fight for my own health. And it’s stressful :(

CassieClaireeee

Holistic/functional doctors are the next step you should take if you’re not making progress with traditional doctors! They are very in depth, ask a million questions, and look at things from a birds eye view. Not just treating the symptoms with pills

Ares4

I find it so hard to articulate my symptoms. Usually whatever I am able to say is maybe a third of my concern

Amaryllis

My medical weight loss doctor is extremely judgmental and makes me so uncomfortable. She’s always staring at my chest and stomach too, like she’s got a staring problem. I dread seeing her every month, but unfortunately she’s the only doctor in the program at my facility.

strugglebus

MY FIRST NEUROLOGIST TOLD ME that the medication she prescribed me was the ONLY ONE that existed and it made me nauseous and I wouldn't eat. I eventually saw a different one and he was shocked I was taking a chewable tablet. I cried when I was prescribed a pill I didn't have to taste

Bre19

10mo

oh geez that is not a good doctor

dremfal

I’m a medical student w/chronic illness and I find it really helpful to read these responses to learn where the gaps in care are. Our school (and most schools now) have standardized patients who give us feedback when we learn how to talk to patients and they tell us straight if they felt they weren’t heard or felt that their concerns were not addressed or what made them feel more reassured. If I was a doctor I would value if my patient brought up concerns about our communication and I would recommend you share your concerns with your doctor too! If after that the issue isn’t resolved, find a doctor you can trust if you can. You deserve better.

Karrieanne73

I had an issue with a dr I usually like. He had sent me to physical therapy and then a follow up with him in 3 months. During that time I went to the er not being able to breath . I ended up having to go to a bigger city farther away and be put on oxygen and was diagnosed with ild . And have a vats open lung biopsy. It was scheduled for right after they scheduled my PT. I went to my first PT appointment and as they were checking me in I explained them the situation and asked them how this will work. They told me it would be better to reschedule for after I’m healed from the vats …. Now onto the 3 month follow up . He said he says I did a no show for PT. And I said no I went and explained about the surgery and they suggested I reschedule after I heal. He looked at me like I was lying . Then he said I have patients that have been through that and was healed right away… now this was about a week after the surgery… and with my fibro surgeries know me on my butt…. I didn’t say anything but in my mind I had that little angry guy from inside out…. So I stewed about it for a long while. My therapist suggested I talk to him about it. Now I’m the type of person that it’s hard to do those kids things. But I went to the next appointment 3 months later and I told him how I felt about that and he … apologized and our relationship has been pretty good since then

Mystical03

They act like they don’t believe me or care. They don’t listen and are too focused on entering things in the computer rather than actually listening to me or examining me. I leave the dr feeling worse than when I arrived. Frustrated completely with the healthcare system and insurance companies.

Mystical03

My dr never reviews my lab or blood work. Every time my numbers are off or bad. I have learned my own medical terms and look up all the language. Thank God for Google. I should just pay Google to be my doctor bc that’s what has been happening since I’ve been diagnosed with lupus four years ago. It’s a lot worse since COVID. Drs don’t want to deal with “difficult patients”

rjay

Never listening,doesnt look at issue and misdiagnosing.

Bre19

oh no

princessbun

Allopathic medicine definitely does not understand chronic conditions. They do not keep up on the literature at all, unfortunately.

NickBar

Facts

KennaMR

Finding the right words to say, and being too afraid to ask for a certain treatment or different options.

Bre19

same

___

Okay this is off topic but my doctor always writes in her notes that I appeared anxious and had limited eye contact lol but that’s just how I am haha I was just stimming and not looking at her

todd

My Dr second guessed the neuropsychologist and said I don't have ADHD . Bipolar2 ADHD

Bre19

interesting

Charmergirl

They don’t actually listen and sometimes give looks like your the crazy one when they are all pumped on an ego thinking everyone is a one size fits all instead of taking the ego down a notch and listening to their patients

Bre19

yep

carrielovelylady

Being taken seriously

Bre19

so true

Mirage13

So many of them don't listen and completely neglect a more human, compassionate approach. They often feel like they're the be all, end all for treatment. Sure, they have the knowledge to treat, but the ego, burnout, and cookie-cutter approach is too common. There needs to be a balance of their expertise and listening to patients, who know their bodies. I don't see that in a lot of the doctors I've been to.

SadMom95

Because I am in my mid 20s, I am not taken seriously. Also the fact that women's health is VERY different from men's health, I haven't received the proper care I'm entitled to

Ally79

They think I'm lying and just trying to get meds

Lucas.exe

Not sounding like I'm exaggerating symptoms. When I say I'd rather have my uterus removed without anesthesia then to go through period cramps, I mean it. I'm not exaggerating its just a fact. 😐

Bre19

10mo

felt

MatchaBunn

I think my biggest problem is getting across how much my symptoms are bothering me. It feels like my words alone are not enough, and they expect me to be acting a certain way before they believe it’s bad. It’s the classic double-empathy problem between neurotypical and autistic people; they have expectations of what pain looks like, but the way I act does not line up with that. When I’m in pain, I work so hard to get my words just right, but I can’t use the mental energy to regulate my body language in the “right” way to be taken seriously. And I know if I was to let my emotions out in that way, I would not be able to get my message across effectively. I just want to be believed and be tested for the things that are highly likely to be comorbid with my current diagnoses. I feel like I’m the expert, but I just want a professional to be able to back me up and offer solutions that I can’t possibly get on my own. I want them to listen when I say what’s going on, and be willing to try different things. I don’t want to keep being told to wait things out when it’s the worst it’s ever been for me. I feel like I do exactly what I’m supposed to by telling them when new symptoms pop up, but they often brush me off. How would I know when something is actually serious when people are telling me my experiences aren’t that bad? I just get tired of putting in the effort to be misunderstood and it makes me stop telling doctors about what’s going on. Which isn’t helpful for either of us!

VariaMoon

They do not listen. They do not believe. They think they know more than the person LIVING with the darned disease. They need education!!!!!!!

ThickAndTired

they tend to be very arrogant and lack empathy/sympathy. which is something I find ridiculous when it your whole profession comes down to trying to diagnose something someone else that isn’t them is feeling. they think because they spent years in medical school decades ago they have all knowledge about health, and commonly refuse to subscribe to new ideologies/discoveries within the medical world simply because they don’t agree, not because it isn’t true. they allow people to die, get terribly sick, and also just live miserably because of their lack of understanding and listening. can’t wait till millennials dominate the medical industry, because all these 50 and up doctors are very low quality.

ManicEmo

I don't know how to properly explain my problems

dream6284

They don't like to listen about how bad my pain levels are... my psychiatrist is good about changing/adjusting meds as needed but my rheumatologist and pcp won't listen about how high my pain level is.

aln97

Them not fully listening to my concerns and comments. especially as a plus size woman 😞

E_belli

They think that every medical problem/symptom I have is because I'm fat, not that there is anything really happening (which there is).

Weiss

Which doctor? It feels more like most of mine see me as what's on paper. They see what they want to see so that they get paid by not effectively treating everything that's connected. "We'll discuss it more next appointment." Well then what was the point of this appointment?

maic

Making myself be totally honest with them

LauraA

Always carry labs and meds with you to prove

gatoraid

Talking, voicing my concerns, it's so stressful I just go non-verbal completely.

Kalena

They don’t know how to treat fibromyalgia and it hurts all the time. The appointments are always so rushed

cinnamon_sunlight

Trying to explain to them that I have an eating disorder and how that may effect what we are discussing/my other symptoms are. It’s rare that it doesn’t end with me in tears.

Lucas.exe

Period pains! I would rather have my uterus removed without anesthesia then go through the pain from my periods. But it gets shrugged off like it's no big deal while I'm crying just thinking about it.

LadyCracking

Assuming they know me, my issues automatically, when they don't, I carry these issues they don't, so how do they know

yumzy199725

🙌 that's so true!

sarubun

They refuse to listen or treat me and refer me back to the same underfunded and overbooked queer general health clinic because I'm trans and the doctors elsewhere "don't feel comfortable" treating me because they don't have experience with trans patients, but like wtf does me being trans have to do with rhuematology or my digestive issues?

dkordecki79

I've been dealing with Doctors not listening for over a year. Run tests nothing shows up now its my mental health. I'm a paramedic with a good understanding of medical issues and overall body physiology and know something isn't right. Health care today is gone

blacklabmom

My doctor won't do the necessary testing to see what auto imune disease i have i also have sbo and they tell me the pain is all in my head and won't do anything to help😥😥😥

Bre19

11mo

so sorry

Raina.8

I feel like they don’t fully understand what I’m actually feeling and I can’t fully communicate how I feel and there is that barrier

Bre19

11mo

yeah

Harley.Q

The fact that everytime I talk about how I get light headed and my vision goes black he says that he don't think anything is wrong with me he thinks it's where I hold my breath but I don't think it's that me taking deep breaths does help me to get my vision back but he always makes me feel like he's trying to make me feel like I'm a hypochondriac when I'm not

Bre19

11mo

I'm sorry

WhistleWhileYouWait

Getting people to believe me about what does and doesn't cause headaches and migraines. I have had them most of my life. I know pretty damn well what I'm talking about. Also, I had migraines for 20 years before I got an official diagnosis. I had spent years chasing things like sinus issues because no doctor took my claims of headaches seriously enough to check for migraine. It took my own motivation and research to demand sinus help and then neurology help. Had to push every step of the way and deal with a lot of "Have you tried Nasacort? And vitamins?"

Cece7

I have health anxiety so they always seem to not take my issues as seriously due to this.

Bre19

11mo

so sorry

Faye123

Not communication but general incompetence. I had gall bladder pain for the longest time that led to spells of me not being able to move and getting very ill. I normally ignore pain but this was so bad it led to disruptions in my ability for every day functioning. I had a blood test done and my white blood cells were elevated. They never found what was wrong and for some reason it stopped. I am afraid it will come back or lead to something worse since it never got resolved.

Saillea

The fact that most of my medical team knows absolutely nothing about MCAS and how it affects the rest of my body astounds me daily.

Bre19

11mo

so sorry

Kyrabooo

The biggest challenge is straight up fatphobia. I have several conditions that cause weight gain. But they’ll refuse to treat anything until I somehow magically lose weight because they want to “see if that helps first”

Kyrabooo

I really struggle to get across how severe symptoms or issues are. It’s like the harder I try to convince a doctor that something is a problem, the quicker they dismiss me.

Lolalove

They don't take me seriously when I tell them I think I have an eating disorder. I've gone from binging to restricting.

Isu

same my parents won't get me therapy when they know I binge and purge

Mooey

I think its called “gaslighting” when your concerns are dismissed or brushed off. Im told, Well, you are getting older(Im 71), or You need to watch your diet and exercise.

Blueberryyu

Being told it’s anxiety

tattooedlizardlady

Not being able to afford the tests that insurance doesn't find "medically necessary".

depressedunicorn

At least with western medicine I always get shoved off like there's nothing they can do that's why I went to a natural doc

LeighRose

Weight! I know I'm overweight I am on meds to help, I'm dieting, exercising and paying more attention to food intact. For some reason even if it has nothing to do with my weight any new specialist I see had to say something about it. I start every introduction now with, "I am aware of my weight and already have a plan in place to work on it, I am not seeking or open too consolation or suggestions on weight lose, and I would like to skip any decision about weight unless it is medically necessary."

EthanMJones

I would say for me it’s the fact that I’m nervous of what they will say to me about the issue I’m trying to tell them

Tobydottir

Meds aren't tested on Native Americans, so I'm often pressured to take things that Natives tend to have trouble with

Amarand26

Me telling them what’s I’ve been feeling and them brushing me off like there is nothing wrong with me or just saying here take this drug instead of trying to find what’s actually wrong with me.

nerd.of_all.things

I forget to mention symptoms, or I forget how much I'm actually affected by symptoms.

VoodooHorizon

accurately describing how I feel or what exactly is going on in terms that a NP or PA will understand. my therapist gets it and will ask questions but doctors or ones more on the medical side don't really understand it as much?

dimemanda

They have bad accents

Cmill

I have had doctors look me in the face, after hearing and SEEING what is wrong with me, tell me that I need psychiatric help. I was a critical care nurse, I know what is needed and what isn’t. No mental illness causes a spine to collapse.

shariadams

I think when a person knows their body and tries to explain it to the Dr and they get offended . That's annoying

AngellMwi

I live in an area where it's known as a "boys club". Due to my own PTSD around men, speaking to the Drs & trying to explain to them that they could be wrong and here's the proof, is so friggin hard. I start crying and look hysterical. Which just feeds into thier mental stereotype. So in general, any communication with the male Drs where I live is challenging

Katharina

To be more sympathetic less logical all the time. More use the common knowledge than what fits the book. Granted I know that’s ther job and it get its done. But no everyone fits into boxes. I’m a human being that wants your CARE not another problem to be solved. And if I can’t be so tell me I don’t deal with __ just bc it’s dosent show to you.

Joie

They never want to treat me as whole, they just want to know what is the worst symptom and we'll treat that, usually with drugs. No one talks about nutrition or how my mind works with situations and how it can relate. But I know so many things are related to each other but no one will look at all of it together. I feel rushed.

Isu

She always thinks I'm overreacting because we can't get to the bottom of certain problems

kitty_cat

Before my current doctor I would get looked at strangely because I’m so young. Luckily my primary care team (primary care doctor and oral and maxillofacial surgeons/specialists) do understand that I need a lot of help, and they will happily give me referrals, medication, etc whenever I ask. My biggest communication problem seems to be that they don’t understand that I can’t get the treatments I need because I can’t afford them. I was 19 when I was greatly injured and had no money at the time. My parents and grandma have spent tens of thousands of dollars on my surgeries and procedures, but I need several more, and am unable to get them because we’ve run out of funds. My husband (24) and I (25) declared bankruptcy and had to move back in with my parents and everyone is trying to make enough but I literally can’t be seen to have things fixed when there’s no money to afford the fixes. My doctors try to get insurance to cover things, but the amount is just too high. I feel so stuck because my pain is too bad that I can’t work, and my disability claim was rejected. I tried to find a lawyer or someone to help me with my case, but no one would and I was actually turned away for being “too young”. I don’t know what to do. I feel like I’m not even living anymore.

Cskyet91

I have thankfully been blessed with a good doctor. He explains things and gives you the options. Goes by his first name with everyone, just a great guy. The only issue I've had is trying to figure out what a pain in my upper left side is. Randomly reoccurring, so catching it has been problematic. We're trying though

Basil_Bay

my doctor consistently telling me I am too young to be sick in any way shape or form, not looking into my joint pain or the constantly swollen glands in my neck, not letting me see a cardiologist until 5 years after my pots symptoms first started.

Starlightie

It's hard for me to communicate how medication makes me feel because I always feel like it's not effective. Doctors will just keep increasing my doses and I don't know how to tell them I want to try something new without sounding like I'm drug seeking. I've had a serious issue with all my doctors treating me like I'm drug seeking and then never giving me to chance to just try something different. It was a long battle just to get on ADHD meds and now I'm in a tug of war with my doctors trying to take me off of sleeping pills even though I show absolutely no signs of drug abuse. If anything, I'm paranoid of abusing my meds so I don't actually take them when I need them and I'll wait until I get delirious from sleep deprivation...

mobychick

I get embarrassed of my conditions and symptoms and usually down play it

Ash.G

yeah I down play my symptoms too.

Denotchka

We have to remember, these medical schools are hooked up to Big PHARMA ergo they’re spouting that agenda. This is why general nurse practitioners are becoming popular because they are being trained in the natural treatment of illness and it’s one reason why we need to encourage them and doctors to expand their medical knowledge base.

BJSTREEHOUSE

Judging by the length of this discussion, there is no doubt about the frustrations of NOT BEING HEARD!!! That's why I try to stick with female Drs. They listen better than their male counterparts. I always give them the opportunity to tell me their opinion before I try to tell them what I think. (Basic diplomacy) But I always do it in a way that shows them I am open to their opinion as the expert. That's why you are there. I am also very tenacious. I refuse to give up. I am my best advocate and I need their help.

blokeo

Because of my mental illnesses, legitimate physical concerns are disregarded as just “being in my head”

K.C

my doctor tried that once. “All your pain could be related to your anxiety” then does literally nothing. Just those words. I swear sometimes they think oh mental illness they have no clue what’s actually going on with their OWN body they couldn’t! So frustrating.

K.C

My age and lack of understanding that I played sports for 17 years. Because of my age they don’t want to diagnose or really do much (at first until I bothered them enough to care) and they won’t take into account the years of multiple different sports I played starting at age 6 until I was forced to stop at 22 die to back and knee pain. After that I gained weight and then ALL my issues were because of that. So frustrating. I’m 31 now and am still having to overly communicate that I feel the sports plays an enormous part in my pain. AND I just had a diagnosis that I was given 2 years ago taken back why? “They said it’s definitely not that because you’re still young and they see this in ya know 40-50 year olds” yup… that’s verbatim from my doctor yesterday. I hate to break it to all them but the tears in my shoulder are also supposed to mostly be found on older people in their 50-80s but yet here I am BECAUSE ITS A SPORTS INJURY. 😒

Nikki03

I've been doing this for 12 years. I would give anything for just 1 day a single day to be pain free.

Bre19

11mo

felt that

Aquarius_Mage

The fact they look at me like I'm insane for asking for more help with my mental health. Talk therapy doesn't work for me, and pills are barely a band-aid. And that's really all they have to offer.

Bre19

11mo

I'm sorry

Strawberryhk

Actually being honest with my symptoms

Bre19

11mo

yeah

Fibrofoggirl

I went to so many dr.s who kept saying it was in my head five years later 22 dr.s finally diagnosed 🤬

Bre19

11mo

that's frustrating

Dad.of.Many

Trying to get her to set me up with an endocrinologist about my low testosterone, because it has been very low most of my life and i think it may be the root of most of my problems

eddie.luvs.u

That I'm not exaggerating my symptoms just because I'm young and appear healthy from the outside

Bre19

11mo

so true

PlaslyMeds

She thinks every single success I have means I can never ever relapse again/ I’m not putting in the effort to stay mentally ok

crumbling_shell

Probably the fact that I schedule appointments and even if its something really serious I sleep it off the night before the appointment and then nothing shows up on the tests. Then the issues usually resume about a week later.

effelle

Anyone have any advice for going in to request a colonoscopy? I feel like I've been going insane for the last ~10yrs or so because I've had chronic pain in my right side and left side of my chest, and i can't get a doc to figure out what the deal is. ): I try to check with an urgent care, and they turn me away to an ER as soon as they figure out it's on the right side of my lower abdomen or the left side of my chest.

emotrash27424

I feel like I may be trans, but I'm not sure if I am. And telling the doctor that is hard for me. And also things that happen to me daily that are very dangerous that I want to tell her but I feel like I can't

Kramber

I couldn’t control my anger today

Emmyyy

Sometimes they jump to conclusions, like a doctor told me I had an std and I didn't know how that was possible because I'm not sexually active. Then I went to another doctor and they said I was perfectly fine..

TheFriendlyGhost18

They tend not to listen to me because I look younger than I am

Butterfly9937

My heart doctor seems to always rush me. I found a myocardial infarction on my EKG print out. I had Noooo idea that I’d had a heart attack before. Then I thought back and I remembered. I had a textbook heart attack after I looked up the symptoms. I brought it up to him and he brushed it off as nothing to worry about. I have tachycardia. Have had it since my month long hospitalization in 2012. They couldn’t and still don’t know where it comes from. I was on Atenolol for the longest with no good results. My heart rate was still 100+ resting. It has been as high as as 150’s resting. I was placed on another medication that is totally working by another cardiologist smh. On my last appointment, I asked him to retest me for cpap. He brushed it off again stated, “you’ve been tested and you Need cpap!” I said NO! I’ve LOST OVER 100 POUNDS AND NEED TO BE TESTED! He heard me then after I was firm. He ordered the test. He hardly sees me so I don’t understand the struggle.

catdad22

My current PCP leans towards hardly ever taking my pain and other symptoms seriously. I don’t know that it’s possible to communicate beyond that.

bptomboy

I feel i express so much but sometimes still dont pinpoint the most important detaiks leaving me with misguided advice or diagnosis'

Sully9016

This is a long one... The biggest miscommunication or barrier with my doctors would be my mother. Blunt, I know, but she'd always speak for me, even though I've told her since I was a kid I knew how to take care of myself. I was put on anxiety medication when I was 14, she started giving me HER medicine (severe adult dosage) before even asking a doctor. When she did drag me into an office, she begged the doctor, demanding that I was unstable in the public. Her medicine made me physically sick, and I grew dependant on the medicine for a while. The doctor gave in and prescribed a new medicine to me. I was having a panic attack in his office, but because of her, not the doctor. All because I was having a sensory overload due to my (at the time) undiagnosed autism. Later on in my life, at 16 years old, she tried to turn my own psychiatrist against me because I caused all her problems, as she says. Thankfully, the doctor knew me well enough and heard my side of the story after she left. Overall, she acts like I don't have a voice. She's been doing this since I was a kid, acting like I was helpless.

WilburEffingSoot

My meds aren't working. I went from 15mg of zolloft to 150 in just a few months. I keep saying "this Isn't working" and yet they keep going up. I keep getting new meds tvhat don't seem to work and some that are just nothing. Things feel worse, not better.

WhiteFlamingo

I had a similar problem for years. I went through four different medications for Tourette Syndrome and they all made things worse. I finally said no to medication in general, but that didn't help. I was just tired of being disappointed. Recently, my boyfriend's mom convinced me to just try anxiety medication. Just try it, and I can stop it if it doesn't help. As it turns out, I needed anxiety meds, not TS meds. What I'm trying to say is: if all of these medications are for the same thing, try something for a different thing. My TS wasn't cured, but it certainly got better. Perhaps what you need is to focus on something else entirely. Also, ask your family members if they take anything that would treat your health problems. I take the same medication as my dad because of our similar genetics.

Tracks

My brain lol. All kidding aside, just takes a while to understand things.

Ella101

Um the fact that she never answers my calls and doesn’t help anymore.

Asteroidrose

the fact that they constantly medically gaslight me. and then I finally get diagnosed by going to three other doctors...

CozyVibez

Many think I'm an addict to opioids. I would love to take opioids every day, sure, but I know the cons outweigh the benefits, especially long term. I use them strictly as needed, but many doctors don't believe me.

hydroepilepic21

I just don't know how to tell the Dr how I feel.

Sincerely

They expect to be paid.

Healthproblems1111

Nobody thinks my pain is coming from my hip dysplasia or my femoral anteversion and I can’t find the right doctor

hydroepilepic21

I just don't know how to get words out .

TLR

Discussing side effects of medications or drug interactions. I don't get any answers

Pooge2255

When they ask if your happy about your weight. Talking about my weight. Or when they ask about having an eating disorder

sleepyhippo

My former doctor didn't take me seriously. I asked for a referral and she went on for like 5 minutes about how it's not her specialty but she really didn't think I'm autistic and she doesn't see how it could be that and she really thinks it's just anxiety blablabla. She was very dogmatic and if something she had me do or take didn't work then my only other option was a more extreme version (iron pills made me sick so she said my only other option was to go to the hospital for infusions, just eating more iron or taking a natural supplement by a high quality brand wouldn't possibly work as far as she was concerned.)

WhiteFlamingo

My doctor really wants me to gain weight. I, on the other hand, am just happy that I managed to get to a steady 117 pounds after spending so long being at 105 as an adult. It's difficult to communicate that I'm not concerned about my weight anymore, and I'm sure it's difficult for her to tell me why I really should gain a few more pounds.

scurrly2

Medical gaslighting is when a health care professional dismisses a patient's concerns or symptoms and wrongly blames their illness or symptoms on psychological factors. “You can have doctors convincing you it's all in your head or to defer to them because they're the professionals”

Bella5120

Whenever I go to my doctor she always dismisses it and says its my anxiety. I get mad because she doesn't take me seriously.

Bre19

11mo

I'm so sorry

ViikMal

My biggest communication problem with my Dr is that they almost always say every single medical thing I have is related to my weight or my anxiety. They don't test me for anything until I bring it up and demand it, which is how I found out I had PCOS by the way, surprise surprise those massive painful periods and feeling like bursting inside me was on fact not just me being fat! It was a whole other thing. Everything boils down to I'm fat or I'm anxious and while both of those things are true they are not the reason why other medical issues are arising. Merely a symptom of it.

Eren2273

My biggest communication with any doctor is finding one that's actually good in the middle of nowhere

Bre19

11mo

that's difficult

Sleak67

Getting them to understand it's a neurological rare. NOT a mental health issue. But now I have a great team

Bre19

11mo

I'm glad

Kittypop

I recently got a new OBGYN who told me the reason I lost 20lbs super quickly last year was bc 2 of my medications can also be used for weight loss. My primary doc obviously knew this beforehand when I had explained I was concerned about the lost weight, but she wanted to run a bunch of tests instead- wracking up my bill. So it's safe to say I'll be looking for a new primary soon cause I just don't trust her anymore. She should've told me what the OBGYN told me. There's no way she didn't know that those medicines could be used for weight loss as well...

Something_Strange

I had to hop from therapist to therapist and worried I might have to do it again ...

IceGoddess

Me being the patient

Chosen1618

They don't listen 😥

Bre19

11mo

I'm sorry

Jewelicorn

Anxiety, and the doctors not listening when I do say something

Bre19

11mo

I'm sorry

Rayningtigress

Hoping that they take my symptoms seriously

RainbowKai

Getting them to believe me or not tell me my chronic pain is just period crmaps

cloudnine

they always think i am drug seeking , or lying about symptoms

colourfulburrito

My doctors all think I'm lying about my symptoms because they're not exactly visible and don't show up on my bloods. Plus it's the usual oh you're too young to have pain in your joints. Boils my piss.

feralsharkdog

My anxiety makes it hard to speak up when I have questions or want to discuss something new. And my memory issues make it hard to remember everything I want to discuss when I do actually get the nerve to talk.

yumzy199725

Them actually listening to what I have to say and down playing or completely disregarding what I have to say on too many occasions at a hospital appointment I have been treated like I'm making everything up or it's nothing the point is it's something to me! That should be enough for them to actually acknowledge what I'm saying 😭

maharahnee

I changed doctors this year. My👍new woman doctor is very supportive. My old male doctor was too set in his ways to be curious or even empathetic.

lillyput

It's very hit and miss at my doctors. The last appointment I was told to "find an online forum for ideas". I have fibromyalgia and it seems like they just dont know what to do.

the_only_penguin

They think my disorder isn't real or just in my head and offers nothing but this simple advice "just cope with it"

Country_FLMama

They just don't "get" it...

TabbysMom

That the pain is real. That I am not an addict.

Mr._Dank

That I want to know if I have anything else to be diagnosed with. I keep getting prescribed medication for bipolar disorder and schizophrenia.. but I don’t think I’m schizophrenic, even though I’ve had many episodes of psychosis. But I possibly could be bipolar..

Angeliquet07734

you can definitely have psychosis and not be schizophrenic. I have bipolar 1 disorder with psychotic features and have experienced tactile hallucinations but never actually saw anything that wasn’t there. The two conditions are usually treated with the same types of medication

lune_mermxid

My psychiatrist doesn't seem to listen to me until I actually present him with the symptoms that I've been persistently telling him for almost 2-3 years now? I was assigned with a psychiatrist through the NHS and he was insistent in sticking me with fluoxetine. See, that wouldn't be a bad thing but he completely neglected the manic episodes I've been experiencing for years. So you can imagine how hell it was.

Ash.G

Probably my biggest challenge with communicating about how I feel is I don't want to sound like I am a hypochondriac because my parents would always call me that when I was throwing up and so I am nervous that people would think that I am just wanting attention.

Mouse12144

They don’t listen to me when I was asking them for a reduction( as have massive boobs) , they also stopped my inhaler, cos I hadn’t seen a asthma doctor in 2 years (covid, lockdowns so I couldn’t) so I have to use the powder inhaler which doesn’t agree with me if I need to use my inhaler , luckily I don’t need it that often but still, have to ring before 8 am to even stand a chance of getting an appointment, you have to book a general appointment like 6 weeks in advance to even stand a chance of having one, it’s ridiculous

Bunny73

My doctor tries to diagnose me with anything and everything and just wants to put me on medication without taking my actual needs or wants into consideration

WhoKnows

They won't believe me, or they'll think I'm just drug-seeking. They've told me I was causing my own pain, I should just have a glass of wine, I was pursuing the wrong career path. They think I'm not willing to show up and put in effort, they won't believe I can't afford the appointments. Meds are fully covered by my insurance, it's the best option for me taking my whole life into account.

The_Pained_Dinosaur

Whenever I bring up an issue to my doctor, they tell me everything is interrelated (I am well aware that a lot of my issues are interrelated), and that I have to treat the other things first. They won't even take time to look into the issue that I'm bringing up, and they won't treat the other issues either.

megmoon

If you’re a young female with diagnosed anxiety, you’ll be written off and not taken as seriously (especially with male physicians)

TJisTired

Getting them to look past my weight to the real problems. Yes I'm big but that doesn't mean I should be in pain 24/7

CSweet94

The mofo literally DENIED HELPING ME with my depression yesterday!!!!! Like he said “well you’re on meds for that so you should be okay.” Despite my telling him I’m sleeping 16+ hours a day out of depression, losing interest in all hobbies, no sex drive, etc. Yet he completely just denied me any help…idk what to do because other psychiatrists want to mess with ALL of my meds or they think I’m a drug seeker because I’m on several meds. I just hate how being mentally Ill makes me feel like I’m a criminal in most psychiatrists offices. The ONLY reason I stay with my psychiatrist is because he got me stable for the first time in a decade. I’ll be forever grateful for that, I just wish he could help with my breakthrough depressive episode. 😔

Deep_Feelings

Not being heard or listened to, getting interrupted, and shutting down from the anxiety of not getting my concerns across. Also, when my concerns are shut down.

Bre19

11mo

felt

Hedgehog9

My doctor told me that antidepressants don't "fix unhappiness" and tried to convince me I was just unhappy..

Angeliquet07734

wow. Time for a new Dr

Bre19

11mo

look for a new doc

KingDragon

That I've tried all different kinds of diets, cutting out carbs/sugars/starches, eating 3 meals a day, eating smaller snack like meals throughout the day, exercising in the morning/noon/night, I've tried combining different advice from people and guess what none of it works and I don't have the money for like Noom/GOLO/etc.

LilyUnicorn

Teardrop try this migraine or chronic pain tour when you have are allergic to pain meds. Makes your day a whole lot more fun. Essential oils used properly can possibly help in the right combination and applied correctly.

Lilidoodles

Definitely trying to get my drs to look past the psychiatric diagnoses and actually acknowledge the physical problems. Also, I’ve noticed issues with doctors sort of pushing me to get through the appointments quickly rather than letting me explain what I need to explain or ask the questions I need. Very frustrating

Bre19

11mo

very frustrating

KaiLuca

My doctor asked why I wanted to be tested for something because he didn't think it would be useful to be diagnosed because of I was it wouldn't change anything meds I was taking ect. But I want to know what I have, I want to know that all these things haven't just been all in my head like so many doctors have said before...

justdoingmybest

My doctor said the same thing. Basically said “we’ll there’s no cure anyways so why would you go to a specialist to find out”. What is wrong with doctors.

Bre19

11mo

ughh that's the worst

feral.dyke

i’m fat and mentally ill. telling doctors that yes, i know that being fat can influence things and yes, i know being anxious isn’t good for your body but i PROMISE i have had these symptoms since before i gained weight and i know my anxiety really well is … hard. they don’t want to listen to me. they’re not willing to hear my side of my own story.

Bre19

11mo

I'm so sorry

feral.dyke

also being constantly told to go back on antidepressants. it’s based on an assumption that my mental health issues are a chemical imbalance, which lots of peoples are not.

basicallyahmx

Not being taken seriously

Shoyo1hinata

My mental health.

Pixxy

It seems like none of my HEALTH CARE PROVIDERS wants to deal with my EDS. Idk what to do. It's just frustrating!

Mr._Dank

My psychiatrist prescribes me medication that isn’t for my conditions. It’s frustrating. She says “it can be used to treat this.” But it’s not made for it. And here I am, still very sick. It’s like I’m her Guinea pig pawn for her to get more money.

chloe309

My new drs don't understand why I've been prescribed max cocodamol and naproxen for 4 years with the risks and are trying to get me to change and try different ones

Tracks

I just have a hard time explaining just in general, how I feel. I think it has something to do to the aphasia I have. Therapist, have told me before I say things but mean something else.

Zorosect

Knowing who to tell

QuinnRose

Judging whether or not your telling the truth or not, and who to trust.

NoobularJess

Their views and knowledge on my conditions. I have no idea what they truly believe and many doctors will happily pretend to be an expert on everything. Finding out you've wasted months going back and forth with a doctor convinced you're lying/ stupid is infuriating

Hatchytt

Not knowing when I should call and say something and when to chalk it up to my conditions acting up. I simply can't trust pain as a symptom. I have to wait for secondary symptoms. Had this happen just recently with "chest pain". Went to the ER, got told that my heart seems fine. Turned out to be likely an h. Pylori thing. And because no one told me that I can't take Pepto, I screwed up and couldn't actually get tested. It resolved before I could do testing.

LadyBrownharth

I looked up my medicine because I was having this weird pain in my chest and arm but the wrong side to be a heart attack. And found out that I can't take motrin, eat grapefruit or take the other medicine prescribed to me, which i had been doing the whole time. I'm not in the belief that the doctors know what you can and can't take. Pissed me off. Now I don't take a medicine without researching it's effects on my condition or other meds.

Izzy94

Ask for letters for accommodations and doctors notes and not answering me for weeks to months 😥

Nikki03

They won't listen to me when I tell them I'm in pain.

LadyBrownharth

I feel the same.

PopDog

my psychiatrist barely tells me anything or what i’m diagnosed but writes the diagnosis in a letter to my gp along with saying i’m not experiencing certain things anymore even though i am but couldn’t tell her because she didn’t ask or give me the chance to tell her anything that she hadn’t asked about

AstraDragon

My doctor only ever asks my husband how I'm doing. She never asks me directly how I'm doing. I'm the one taking the medication and I'm the one who knows me best so shouldn't she be asking me?

LadyBrownharth

she should be. I got really annoyed with my daughters old doctor because he kept asking be how my daughter feels while prescribing her antidepressants and anti-anxiety medication. She was 14-15, she knows how she feels better than I do. I had to switch doctors for her to one I didn't need me to attend with her so she could get her medication right. Maybe you should see the doctor without your husband going in with you.

Angeliquet07734

I would say that the next time that happens. Like hello 👋 I’m the patient and I’m sitting right here! 🙂

CharlieAlien

Got a new doctor and she rushes me through the appointment and makes me feel like I'm being ignored and like she doesn't believe me.

MagicBunny

Having to prove to them i need more help but them not believing me because i "look normal" ..my pediatrician used to belittle me so much and scream at me if i tried to tell him i need to be properly diagnosed and he told be to be a good girl and take the wrong meds x.x... years later and i got diagnosed with Ehlers and many other things i had no idea of

Pinkdreamer

They refuse to treat me with what works, like they think they know me better than I know myself.

Olivebutter2236

"Maybe if I could trust doctors to make the effort to figure out why my body is doing all these abnormal things I wouldn't have to list all of my unexplained symptoms on google in search of a correlation and a proper diagnosis or ask a medical reddit thread all my unanswered questions and hope something reliable comes up. So much talk these days about people self diagnosing yet no awareness or consideration of the lack of professional and trust worthy doctors. If I felt like I could go into a doctors office and explain all my symptoms and be taken seriously and work pro actively to find treatments and solutions I'd never search shit on google ever again."

AstraDragon

My psychiatrist keeps trying to take me off my meds even tho my meds help me

mashed_potato

I am so scared to bring up sexual issues and trama around that subject. I need to talk to a doc because I'm not sure if its physical or 100% emotional or both, but how tf do I even bring that up 🥲

SapleMyrup

my therapist is convinced i’m not actually bipolar and keeps referring me to different psychiatrists. so far they have all diagnosed me as bipolar based on what i tell them and prescribed me the same medications because the medications i take are helping. now she thinks i have a hormonal imbalance or something and wants me to get blood work done. i really don’t want to keep seeing more doctors to try and prove i don’t have the disorder i was diagnosed with 5 years ago. i’ve been on meds for it for 4 years and they help significantly but i still need therapy for trauma and such. I don’t know why she’s rooting so hard for me to go off my meds when they are helping, and multiple psychiatrists have said the same thing. she’s a great therapist otherwise. I don’t know why she is so adamant about this.

Demon

When they talk to the other person in the room rather than me...and when they try to tell me that when I'm saying is wrong itsnt actually wrong or how my condition works. like sir please don't confuse your 2 hour lecture on my 20 years of living with the condition!!!

Olivebutter2236

Everyone is too obsessed with numbers on tests instead of what I am actually feeling in my body. They trust the numbers over my word and feelings.

LadyBrownharth

With my past doctor it was because everything wrong with me was because I'm older and fatter. He would say "yep hang nail, it's because your heavier. These things happen as we age." "Yep migraines, you could try to lose weight but these things are a sign of age" "You're pre diabetic, it happens the long or heavier you get." "Your blood work is better then I expect for weight and age. [Not mentioning I have high cholesterol or blood pressure] "

CoffeeBeanC

Most are convinced its all psychosomatic, and I'll be magically cured when I leave my abusive home

Coraciidae

I feel like sometimes my doctors can't understand what I'm going through. A lot seem to treat me as a number rather than a patient.

ViikMal

Getting listened to at all as an afab fat person. Instead of taking me seriously when I tell them about the things I have researched and learned I probably have, I. e. Autism, they assure me I can't because I don't fit some inaccurate outdated idea of physical markers for those things. Like yeah, I know you're "the Dr" and went to school for this. You're also a GENERAL practitioner, I'm asking for RESOURCES to SPECIALISTS who ACTUALLY went to school for THIS IN PARTICULAR, I've researched this for years, I fit almost every symptom, you don't take into account SOCIO-ECONOMIC factors that I as someone who wasn't born a cis amab individual underwent, thus changing outward appearance of symptom displays in public areas, and I want a freakin second opinion from someone who directly studies what I know I have, NOT FOR SOME GP UNDERSTUDY TO TELL ME MY FACE DOESN'T HAVE THE RIGHT SHAPE AND I MAKE EYE CONTACT SO I COULDN'T POSSIBLY BE AUTISTIC because the world acts like autistic is SUCH a BAD WORD!

Juno2191

Trying to convince someone that I am actually in pain, and that it is often quite high. I am used to hiding it that it's second nature, so if I don't look like I'm in pain then they don't believe me and won't help

UnleggoedEggo

My previous doctors didn't do anything about my ear infections, no antibiotics, no medication at all. They didn't believe how bad it hurt. When I finally went to an ENT, they said that I definitely had a bunch of fluid in my ears. They also told me that my adenoids were swollen and I had a deviated septum. None of my other doctors cared to check...

CraftyMama

Being hearing impaired, relying on lipreading, doctors wearing masks, not being able to hear clearly but typically not being seen as needing sign language interpreters because "I'm not 'THAT' Deaf"😒🤔

MarVell84

Getting to see a Dr to talk to them

Pain_Warrior89

That not everything is my fibromyalgia

EmzPow

Getting him to understand that I'm suffering despite medication and okish bloods... Bloods are not everything with autoimmune diseases or chronic conditions and that it's not fibro! I need help!

Natz

Having a doctor who will screen you with tests to get to the root cause rather than go in you off with false diagnosis or pills.

cat69

Having drs prescrube medicatiins that later cause serioys sudeceffects without them warning yiu and torally ignoringvyou when you brungbup yoyr side effects and act like never heard that before when it is well researched and verified

Angeliquet07734

I’m dealing with that exact same thing. I was put on a medication 13 years ago for high blood pressure that isn’t a narcotic yet causes horrible physical withdrawal symptoms if you stop taking them. Like a heroin withdrawal. I’m still stuck taking them and god forbid I miss a dose then it gets dangerous. It causes something called rebound hypertension which means your blood pressure spikes dangerously high and is difficult to get back down. Then the vomiting starts, racing heart, hot and cold sweats, and severe body aches. I remember the Dr was really pushing this medication at the time too

Njade

My doctor won't listen when i say im sure i dont want to have children. She tries to convince me that i will change my mind. But i know myself and i have known what i want for a decade.

Yuley

My Dr refuses to tie my tubes or donate my female parts to a woman who can't have children of her own just because I go to a Catholic hospital and they don't believe in that, but I already have enough children, and my fiancé is hyper fertile, so I understand your pain with this.

Kelso9344

My regular doctor has worked her butt off to help me with my mental health and migraines. Who I absolutely have issues with is the students who aren't doctors and they are practicing with regular check ups when my doctor doesn't have space. The last time I saw one he didn't listen to anything I had to say he just repeatedly tell me I had to go on a diet and lose weight. What he didn't know was I have an eating disorder and a few months before seeing him I fell 6ft off my porch onto concrete. I crushed discs, my spine was so out of line sections were moved, my pelvis is crooked, my tailbone was going the wrong way, and there is nerve damage. So when he brought in the main doctor to fat shame me more she asked how I've been exercising and dieting I looked right at the wanna be doctor and said "if he looked at my chart or let me speak he would see that I fell 6ft and (listed the damage). I also just go approved to see a neurologist for my migraines. So right now I'm more worried about being able to get out of bed in the morning than my weight." She understood and told me she hopes things will work out soon so I can be pain free before she left the room. And what does little wanna be doctor say? "You should talk to (doctors name) to get you on a weight loss medicine for your weight if you can't do it the right way." 😒

Yuley

You should totally get the book "Things No One Will Tell Fat Girls" by Jess Baker. She is a lady that a lot of people fat shamed for years and now she's speaking out in a good way. My book club picked this book and I am totally loving it even though I'm only a little bit over my recommended weight. The point of the book is to stop the shame about body image and start loving our body no matter what it looks like, or how healthy it is. I truly believe you will love this book.

EliteLexy

Aside from my Autism, his love for using scripture every chance he gets. I am not Christian and have a very hard time understanding his connections to his scripture and what the lessons are that he is trying to communicate.

Yuley

I've never experienced a Dr do this, but a lot of church goers do it all the time without thinking about what everyone else understands or believes.

Angeliquet07734

i really hate it when anyone does that. Not everyone is religious and not everyone is a christian. I’m an atheist myself but I don’t go around forcing my briefs down anyone’s throats. For instance, I have 3 kids that have 3 very different belief systems. I let them decide what’s right for them

LilyUnicorn

My doctor only listens to half of what i say and puts whatever she wants in my chart. Then i need to go back and correct things.

Zebrapotato37659

Not wanting to give an official diagnosis and thinking I’m over exaggerating my pain

QueenBee90

Was in sever pain, which turned out to be slipped disk I remember fully having a breakdown panic attack on the phone and the doctor was shouting at me 'I won't precibe any pain meds' didn't let me talk or explain my actialy symptoms fully, It's stuck with me ever since. Mentioned nothing and just stayed silent while I was having a breakdown right there and then over how much pain i was in 🙃 left to suffer and make myself worse if she'd of helped me then I wouldn't be half as bad now

Angeliquet07734

yeah sounds familiar. A lot of drs and dentists are like this now. They are so afraid to prescribe any narcotics to anyone because to do so has become a liability due to the opioid crisis. I’ve been in excruciating pain for days with two infected teeth so I went to the dentist yesterday and I damn near hit the roof when he touched it and he only gave me some antibiotics. That’s it. I’ve been damn near overdosing on ibuprofen and I can’t get them pulled for a week. I can’t eat anything unless it’s soft, can’t sleep and my stomach’s upset from all the pills I’m taking. Last night I seriously considered going to the hospital

Hiiieee

I've noticed that doctors aren't very well versed on herpes which made it hard for me to figure out what to do at first. But after more personal research, I learned how to cope and treat myself outside of the antivirals my doctor gave me. So it would be better if they would maybe research a bit more when they get a Patient they don't know much about. Not just give them pills and that's it.

100p

Just please be quiet for 1 minute and listen to me without interrupting. Once i finish describing my problem you are more than welcome to talk and ask questions but i just need that first 1 minute to talk without being bombarded with questions

Yuley

My biggest communication challenge with drs is when 1) they don't have enough time to listen to your problem, 2) they sometimes don't bother to show up to the appointment or call to cancel it, 3) they prescribe drugs for a symptom not the cause, 4) they wind up prescribing more drugs to deal with the side effects of the medication previously prescribed, 5) they don't keep accurate records of what you are currently taking, 6) they don't think to check prescription interactions before prescribing something new, 7) it takes a call to 911 to get to the root of the problem in the first place, but by then it's too late damage has been done. This list does not apply to every Dr or every patient, but these are all things I've experienced. Best of luck to the rest of you!

JustJessNess

🙌

Len

Recently I've decided to go off DEPO because none of the doctors would listen to my concerns :(

Mai0897

I get told the referrals and medication requests that I need will get done and I will be treated but nothing ever gets chased or checked on so I am left to do it all myself.

BabyCJ

I feel like whenever I go to the doctor's to talk about something they see the word 'Anxiety' on my paperwork and automatically believe that my problems stem from that. They don't actually listen to what I say. They just blame things on my anxiety

StrugglebutnotQuit

Doctors believe that every new/different symptom I have is to do with my condition so "nothing can be done". I think they go with that cause its easier than thinking well actually I am prone to getting other illnesses as well

beater.queen

My psychiatrist is online, but she's been the favorite of the 3 I've had over my 27 years of life. She's very humble and I think that's really important in that field. I came to her with severe adhd problems coupled with a false bipolar diagnosis and she had me go get differential testing bc my therapist said she didn't think I was bipolar. Plottwist, I'm not bipolar and my old psychiatrist just threw me in the bipolar bucket bc I'm an adhd woman with social anxiety and rejection disphoria. My new psychiatrist is the only one who has ever taken me seriously. All my previous ones diagnosed me with all kinds of disorders that are not even applicable. My new psychiatrist really listened to me and my problems with my medication from the previous one and has been really supportive while being cautious about prescribing unnecessary medications.

amissundastood

them gaslighting the sh1t out of me

FlyingLizards

They keep avoiding the hints or direct requests I drop that I want to talk about my past relationships because they're screwing with me. I think they just think it's normal "young love" emotions or that I'm just horny. I'm 29. I have ED. I can't feel anything anymore.

Laura1999

They blame most things on my weight even though I gained 5 stone when I became wheelchair bound for 3 years, even now when I've lost 2n half stone so far everything is still down to my weight 😥

SomeKindaKid

I will not accept “that’s just being a woman” as a response to every issue

NonbinarySlytherin

Well, everything is caused by anxiety, I'm in my 20's so a page and half of diagnoses can't be true and I can't be taking a gallon baggy of medications either, you are strong and don't need help whether you can or can't hold a pencil or walk without mobility aids, I CAN'T DO THIS ANYMORE! (Yep a doc has said that due to my list of conditions.) Oh and my personal favorite is, "are you still in that boy phase?" Glad for the great doctors I have had and have now but sometimes they need a bit of work with peopling. But a lot of us do.

Angeliquet07734

I don’t have any problems with my primary care Dr, she’s been great and really shows that she cares about my health but my psychiatrist forget it. I’m 48 years old and have had insomnia since I was a teenager and she refuses to treat it. Instead she offers me medications that I can’t take and I tell her this at every monthly appointment but still nothing. I know there’s thousands of other sleep meds out there but she won’t let me try any of them. I honestly don’t know why I’m still seeing her. I should ask if I can see someone else in the practice because I’m sick of not being heard 😑

LaurenRomero

Knowing what the problem is but they won’t listen to me and fix it , they think I don’t know my body.

GingerSnapple

When they make assumptions instead of asking questions about what's happening with me. For example, if I say I'm in pain, they assume it is muscular and not my digestive issues or that I'm just looking for pain meds even with no history of addiction and not being on any pain medication.

roseblue1

I understand where you are coming from

WitchyWoman89

With my psychiatrist specifically, her very real concern of me ever having a manic episode. I'm not manic often, and when I am I'm on top of the world and I clean and organize my house. I get brief angry manias, basically I'll blow up on my husband then immediately apologize and he knows it's not about him so he doesn't get upset. I'm normally depressed with zero motivation.

Bakon

I get anxious and don't know where to start and I worry about taking up too much time, I worry about not being believed, I worry about sounding stupid, I worry a lot

seedling

There's just never enough time!! This is not a "my doctor" problem, it's a systematic problem. I simply do not understand it. How can anyone receive the care they need after a 15 min conversation? I wish doctors and therapists were the same. Like you couldn't be one without being the other. In order to receive care, you must have hour-long sessions and address mental and physical health together. My doctor honestly does a fantastic job of that with the limited time we do have. I just wish there was more.

AuDHDisney

I'm having to get my 3rd ASD diagnosis, as they refuse to believe I could have succeeded in anything if I was "Actually autistic", so I'm fighting a false Histrionic Personality Disorder diagnosis. I've received no medical help for a year due to this.

Anon9827

Don't worry you'll get diagnosed soon I wasn't diagnosed till I was 17. You just need to find the right doctor

hydroepilepic21

I dont like going to the Dr's for one, and for two, seeing new Dr's makes things worse.

LE95

just communication in general. asd / adhd maybe, but it requires me to get the doctor to repeat a lot and to oversimplify almost everything they tell me.

LemonApple

My biggest problem is being heard. I always feel they are in a rush to get me out the door. Yet when ignore things for a long time and they build up they always say "why didn't you come in sooner?"

ChickenGirl1204

Why didn't you have an earlier opening? 😜 Seriously, all love to doctor's and people in the medical field, but sometimes I already know what I'm feeling and doing and I don't need to be rushed through just so you can check off the "ope, they got their yearly wellness exam" box.

JessyP

Getting him to realise I need more support and that sometimes I am not calling in the day because I am basically too ill

Winchester

Everything. Getting appointments, getting help with the pain, just everything. All I got is self management for the pain when they haven't even managed the pain yet.

ChoicelessHope

They don't realize how close to the edge I really am. I tell them but no one believes me. I'm stuck in a Hamlet soliloquy 24/7

CancerFighter2015

To me, it seems like they don't hear me out. Especially if I'm going through this pain just because they're not in me. But they truly don't understand how this condition affects my life to live normally and peacefully

TattsCatsNaps

To me, I feel like I would have more if I didn’t flex my role as soon as I meet them. I introduce myself as the senior health professional I am - and they tend to always listen. However as a women, i feel if I didn’t do that, if I didn’t enter these conversations with “hi, nice to meet you, I’m CatsTatsNaps and I’m also a senior professional in …” then I’d be at a high risk of medical gaslighting

AnxiousPotato02

My diabetes and her not getting back into can ntact with me even after I've told her about the extreme lows I have when I take the medication she prescribed to me, thinking she can regulate it. I'm a type 2 diabetic, and I work in a factory now and have for the last few months and so now my numbers stay in normal ranges for the most part.

kateafranklin

the anxiety of, “do I look like im drug seeking or being dramatic?” When I know in reality, I’m not.

beebz

When they blame my weight for a few of my health problems and I know in myself it's something more

ShortcakeBirdie

I'll mention stuff for years and one day she's like, "that's actually very serious, you've never mentioned that before????" And I'll be like, "I've been complaining about it this entire time but ok" 💀

Overcomer

Explaining to them what I am feeling inside my body

ThunderBeetle

He doesn't listen

Zebrapotato37659

The doctor won’t even look at the pages of notes you’ve written about just one health condition and dismisses my “issues”. Next few months rushed surgery (everything worked out great because of God)

Bluefire

I'm too heavy for any of them to take much into consideration despite the fact that I am DIAGNOSED, and also around here my PCP is so filled to the brim with medicaid patients I haven't even MET her, just her nurse practitioner who will literally say all is fine and then another nurse will call me two days later saying I immediately need a supplement or possible physical therapy

ChickenGirl1204

Ugh, not just one doctor but SEVERAL... 1) Just because my BMI has been high for most of my life and I've always been a bigger kid/teen/young woman, I've been told numerous times that losing weight would be healthy. I agree, I could afford to lose weight. The issue comes when the doctors don't seem to listen to the other conditions at hand before saying "oh, just lose weight" or "oh, eat better." As someone who just recently got their diagnosis of PCOS, it's far easier to tell me to lose weight than to actually do it. I can eat as healthy as I can and exercise, but the last thing I want you to tell me after all of this hard work is that it's not enough. 💔 2) My dentist needs to stop saying I have such large tonsils. 🤣 Seriously, you've been saying this since I was 5, I think I know they're large. 3) Overall, the biggest challenge is when you feel rushed during a visit or like the doctor is just checking boxes and not really listening to what you have to say. I'd rather have a doctor send me home with no diagnosis but a full hour of support/hard work to find a diagnosis rather than one that sends me home with a diagnosis just to get me out of their hair.

Rozics

Getting an appointment

LeonardMartin

Getting them to listen to me! I've been going to orthopedics for years and they only just figured out I have a torn mcl. This comes after a doc reduced to give me an mri, and told me my knees were supposed to hurt

LeonardMartin

Every dr i see about my knees assumes I mean my kneecaps. I had an orthopedic dr tell me my "kneecaps are supposed to move" when I was in for knee pain and subluxations

anniidoll13

11mo

Him thinking I just want more opiates. I don't! But if it's gonna get me to work, cooking dinner, out exercising, playing with my kids, actually taking care of myself and doing everything as normally as possible then why won't you give me them???? We've tried all the others, we've gone down every road we could and we always end up back at dihydrocodeine and morphine. It's what works for me. So please listen to me when I say I'd rather cross the 'addict' bridge if we get there than be bedridden at 30 years old with young kids.

_Rat_

11mo

I do my best to push how serious my symptoms are but I’m often dismissed.

KatieKitKat

11mo

I tend to blank on what's happened over time & the things I knew I needed to talk about. But I just end up not remembering until I'm home after the appointment 🙃 😅 It's not that he doesn't listen/believe me/take me seriously. It's just I've been going to psychiatrists & therapists since I was 5-6. My diagnoses have been documented over time with research & testing. But after going into mental hospitals as a kid (1 in 3rd grade & the 2nd in 8th grade) I just always had this fear that if I said the wrong thing I'd be sent to another one. They weren't bad facilities it was just overwhelming. Especially the 2nd one cuz it was mainly done cuz the Dr that we were seeing would only put me in his care after he met me in the mental hospital (which looking back now was an iffy sign. Plus he ended up taking me off meds that worked & then put me on 3 antisychotics at the same time. (Which gave me the liver of an alcoholic which was 2nd warning)) But he was the only one my medicaid would pay for, but my dad retired early to use his bonus to get me to a better psychiatrist who got me all sorted out thankfully. But yeah I deal with my subconscious going "say the wrong thing & they'll lock you up!" Which I know they can't do unless with permission from my caretakers & it mostly happens when suicide/suicide attempts/extreme self harm is happening. It's just hard not to be scared you know?

aloevera0

11mo

i remember absolutely nothing when i’m there talking to them. i have to bring my mom so she can talk for me

Slugsinameatsuit

11mo

Getting them to actually listen and hear my concerns. I can book a 30min session and be rushed in and out within 5. I understand I have a history with drug addiction but I'm honestly just trying to get some kind of mental health plan/counselling to try and be a at the last normal version of me.....

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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What’s the biggest communication challenge with your doctor?