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hamidown

Updated 1y ago

Just got diagnosed with EDS, what now?

hey y'all. I recently got diagnosed with EDS. I've had joint issues for 16 years and it took me needing shoulder surgery to get diagnosed. but like what do I do now?

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strigiformes

2y

I'd suggest seeing a physical therapist if you can. Avoid overworking yourself to where you'll have a flare up, but still stay active. Everyone's symptoms are different, my hypermobility and issues are more in my legs. I gave up on exercise for years and let my muscles weaken because of how painful it was, don't do what I did!! You don't have to run or anything fancy, but I've noticed I really really like walking! If you have days where you need a mobility aid, don't be afraid to use it!
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Chesne

2y

Like the person before me said, find a good physical therapist that you trust and that LISTENS to what you say. A good physical therapist is a life saver. Get into exercise that is easy on joints. Rule of thumb: If a normal person can't do something with their joints then you shouldn't be because you can cause more damage.
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Mickey_Buff

2y

Find a good physical therapist who will listen to you and find a good orthopedic doctor too

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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