Hi, I have classic-type EDS with hypermobility in my joints. This is a recent diagnosis that has lifted some weight off of me from years of doctors telling me I’m fine since EDS has to be specifically tested for. However now that I know why I’m 20 years old with the pain of a 70 year old, I’m focusing more on symptom management. I’ve tried a lot of things, which I will list as much as I can remember:
-Massage (many different types- deep tissue, trigger point, hot stone..)
-acupuncture & cupping
-chiropractor (which I did for several years before realizes that it only made inflammation worse)
-IV fluids (but they are expensive and my insurance wouldn’t cover them, so I don’t truly know if they would’ve worked. If someone has experience and recommends them- let me know!)
-saunas, infrared, cyrofreeze
-physical therapy (which I actively do)
-exercise and yoga) also actively do. I exercise daily, it distracts me from pain)
-pain medication… a lot. To name a few- Celebrex, hydrocodone, amitriptyline, oxcarbazepine, cyclobenzaprine, meloxicam, tramadol, tizanidine, nabumetone.. these are just the ones I can think of…
…when it comes to pain meds, i prefer to only take things as needed, like if I’m screaming in pain. As someone who deals with chronic fatigue, taking them wastes several days feeling like crap.
I take a butt ton of vitamins and supplements too:
-Omega 3
-L-Glutamine
-MSM
-Carnityl
-Iodine& Tyrosine
-Rhodiola
-Calcium
-Glucosamine Chondroitin
-Meriva SF
-Collagen
-magnesium
-B12
And multi vitamins.
For those who read this whole thing, haha thank you. I am truly desperate. Any advice, guidance, anything…. I would appreciate so much. Thank you.