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Emcee

Updated 1y ago

Seeking advice for EDS treatment

Hi, I also have EDS. What kind of doctors do you see that treat it? What treatments have you tried?

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Beetlele

2y

I get treated at a pain clinic, I’ve tried ketamine infusions, physical therapy, medication, braces, and trigger point injections. So far it seems like bracing unstable joints and trigger point injections have helped the most, I’m also looking into getting a cane.
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Kelsi

2y

get the cane! It helps so much! It was definitely an adjustment, but having it when I need it has really given me some control again!
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Kelsi

2y

Hi! I have vEDS/POTS. My regular doctors include my pain specialist, cardiologist, and neurologist. As far as treatments, I’ve done it all, as far as I know. PT, oral meds, IV meds, surgeries, infusions, therapy, mobility aids, injections, creams, the works. I’m currently discussing getting a port and doing home infusions and am probably having an ICD/pacemaker placed soon as well. How about you?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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