Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

anxious.queer.zebra

Updated 1y ago

Need advice for muscle pain with Elhers Danlos

Hey does anyone with elhers danlos get relief from muscle relaxers? I have to work to survive, and I really like my job. But my legs can't handle it. I wanna quit already simply because of pain. Someone, anyone, please give me advice

Can you help? Connect today

avatar

toasties

2y

I’ve heard muscle relaxers can cause a lot more subluxations and dislocations, because the muscles have to work really hard to keep everything in place. Maybe a TENS unit would help? Or getting accommodations for little breaks with those portable leg squeezers/massagers?
avatar

mia.lilli

2y

Muscle relaxers have been great for me but it was hard to find the right one. Originally I was on tizanadine, which relaxed and felt great, but I was having more subluxations the next days. Now I'm on methocarbomal and it's been much better.
avatar

Constantine

2y

I don't, but I want to follow this thread to see what others are saying.
avatar

FallenFeylah

2y

I haven’t found much relief from them personally. They seem to either do nothing, or relax too much and I sublimate a lot easier. The one thing I’ve found they do help with is the spasms I get in my ribs occasionally and the regular human back pain. But for me it’s almost not worth it. But everyone is different and hopefully they work better for others!
avatar

AllieMae

2y

I do daily Epsom salt baths and use a foam roller on my legs and peanut ball roller on my back. Actively loosening the muscles is the most effective thing for me, and what my physical therapist recommends. It really helps me to relax before bed and wake up feeling good the next morning. I can make it through my days now but really just have to be consistent with it
avatar

anxious.queer.zebra

2y

I do everything I can at night, but my pain wakes me up everyday. Have you done b12 shots? Are they helpful instead of muscle relaxants?
avatar

chronicallyfab

2y

Truthfully, doing ice on my back and neck for 20-minutes twice a day has provided more relief and healing for my muscles than muscle relaxers have. While muscle relaxers do help relieve spasms for me, I often end up with more subluxations the next day or new trigger points in my neck and shoulders.
avatar

ninners

2y

I take Carisoprodol, and it has been one of the only things that has helped this much!
avatar

Tinkerbell82

2y

We shouldn’t take muscle relaxers. And it’s been a long day so I don’t have the brain capacity to explain it tonight. #brainfog. I’ll try to remember to hop back on tomorrow
avatar

Heaven197987

2y

I only take to help with my extreme spasms they do help I don't take often because I build tolerances to things easy I would take to see if you get improvements but remember muscles hold the joints so taking could increase risk of dislocations be careful if you are wanting to take
avatar

Indigo.collective

1y

I have not found relief from muscle relaxers, but I have from stronger NSAIDs like Meloxicam (if that is a safe option for you of course) but if you have a chance to see if it will help it's definitely worth checking for your health!
avatar

Cin

1y

Stay away from NSAIDs you will destroy your kidneys

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc