Hi....I had confirmed endometriosis. I say "had" because I ended up getting a total hysterectomy which took care of the excruciating pain I dealt with daily for literally years. Its a miserable disease and I wouldn't wish it on anyone. I was chronically anemic, ridiculously long periods and I should have owned stock in feminine products, LOL. I had 2 major surgeries before my hyst to clean out the endometriosis. In all 3 surgeries I had to be completely opened up because there was so much to remove. My first surgery, I was cut bone to bone, the second and third was belly button to pelvic bone. All 3 were at least 3-4 hours long. Let me know if I can answer any questions about it.

I have not had an official diagnosis of Endo, but it's highly suspected. I am having a laparoscopic excision surgery somewhere in the next 2 months, just waiting to get it scheduled. I'm getting a surgery with an endo specialist that I was told about that has a 99% success rate and I also have 2 close friends who have had surgery with him and are in endo remission. It was hard getting to where I'm at with all my other chronic illness diagnoses and getting to the right doctors, but as I'm sure you know well you have to keep advocating for yourself and keep moving forward to get the answers you need!