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Birdies

Updated 1y ago

Living with Endometriosis and Pelvic Congestion Syndrome

Does anyone have both endo and PCS?

Can you help? Connect today

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Barrfamily

2y

Do u pcos and endometriosis
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Birdies

2y

I have pelvic congestion syndrome (PCS) and endo and I'm just looking for someone to talk to about it.
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Barrfamily

2y

I pcos and endometriosis
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Barrfamily

2y

I’m sorry
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Barrfamily

2y

Yes what are your symptoms I’m so sorry
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Birdies

2y

I can't always tell if my general pain is from endo or PCS but some specific PCS symptoms I have are my left foot getting hot red/purple, pain with standing too long/pain with sitting too long, veins popped out in my stomach/vulva/legs/feet (mostly always the left side), numb legs/tingly legs, persistent genital arousal disorder (PGAD) - one of the worst symptoms tbh, vulvar itching, feeling full and very bloated when I go from laying down to standing and several others that are also endo symptoms. I am only 20 years old and want children so I am trying to stay away from vein sclerotherapthy and coil embolizatio...they just keep switching my bc and hoping it does something but I'm exhausted/depressed and just want relief. I sure you can both understand that feeling
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Barrfamily

2y

Yep I am in my 30s I only have one ovary I was diagnosed a year ago and b4 they did my d And surgery they told me I had pcos too
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Barrfamily

2y

Do u bleed heavily too
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Birdies

2y

I used too, I bled from January-June straight before they finally switched my bc again and now since I switched I've only spotted/bled after sex
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Barrfamily

2y

I had that issue too they switched my birth control and did the d and c I still have lot of pain just No bleeding
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Barrfamily

2y

I hope you feel better soon
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Birdies

2y

Does it hurt for you to push on your uterus area? I think it's an endo symptom but not sure, the spot that hurts to touch has been hurting without touching it lately
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Birdies

2y

I've never been officially diagnosed through a lap with endo (I have with PCS through a CTV scan) they assume I have it because it runs in my family and I have all the main symptoms (tmi but my grandma had blood clots the size of baseballs that would clog the toilet)
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Emmyyy

2y

I have endo! I don't have pcs but I know people that do and I know it is UNBEARABLE. Both are very sucky to have, my cat helps with my endo he pushes on my stomach.
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Birdies

2y

does it hurt when he pushes on your stomach? It hurts to push on my lower left side, wondering if it's an endo symptom

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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