Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Pero

Updated 1y ago

Looking for advice on epilepsy

Do anyone of you have epilepsy

Can you help? Connect today

avatar

strugglebus

1y

✋I have sleep-sensitive epilepsy and juvenile myoclonic epilepsy
avatar

Blue001

1y

✋ I have juvenile myoclonic epilepsy too xx
avatar

Pero

1y

I have myoclonic as well
avatar

Beckboop

1y

same ✋
avatar

Ash.G

1y

I'm curious what myoclonic epilepsy is. I've never really learned about it before.
avatar

MooGoober

1y

✋ generalised and photo sensitive epilepsy!
avatar

Blue001

1y

I have photo sensitive epilepsy too. It’s nice to know I’m not a complete alien ☺️
avatar

Beckboop

1y

I used to be photosensitive, not sure if anyone else has had that experience
avatar

Blue001

1y

I think it’s hard having juvenile myoclonic and photo sensitive epilepsy because people label you as weak and incompetent. Also, I’m 20 so all my friends are either going out clubbing or going somewhere with flashing lights so I often feel left out. I get embarrassed that I have epilepsy so I never tell anyone because I don’t want them to view me differently
avatar

hydroepilepic21

1y

I do
avatar

Sunn

1y

I do. Not sure if it's a specific kind, but all I know is that I have tonic clonic seizures. It sucks, but I manage
avatar

BrandonSay

1y

Partial tonic-clonic myclonic seizures here, mostly have them in clusters while I sleep now
avatar

klutz03

1y

Grand Mal seizures....so much pain! In November I had a seizure that broke my nose, gave me a concussion, and made me lose a lot of bl00d :/ my roommates said it looked like a crime scene
avatar

Rene1027

1y

I do. I have tonic clonic seizures and myoclonic seizures. Last one was last Friday
avatar

Rene1027

1y

I said that and then had one like 20 minutes later.
avatar

TheOriginalBeans

1y

I just got diagnosed yesterday, I have grand mal seizures.
avatar

BrandonSay

1y

I have had seizures that have knocked out several of my teeth and I can't afford to get it fixed, it's honestly really embarrassing
avatar

Justme22

1y

I'm generalized, so some of all since birth.
avatar

SizzleNickel

1y

I do
avatar

MonarchL

1y

I do
avatar

MonarchL

1y

I have tonic-clonic seizures and absence seizures
avatar

Ecxlipsegal

1y

i do. not sure what kind i have because i've had about every seizure growing up
avatar

faerywyrm

1y

I am an epileptic. I have mostly partial complex seizures, but occasionally focal ones. I was told that one in every 24 people are actually epileptic, whether they ever get diagnosed or not.
avatar

Ash.G

1y

I am photosensitive and sensitive to pretty much every sense except for touch for at least migraines. I never really got tested so I'm not sure if it's migraines or something else but migraines run in my family. Then again my migraines don't seem like how the rest of my family experiences them. I get them more often than everyone else does and for a shorter amount of time. It also makes me feel like I'm going to pass out or actually pass out.
avatar

Charley93

1y

Yes I do
avatar

Aikio

1y

Yep

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc