I call mine a disability because I have school accommodations and my brain processes things differently than a neurotypical person :)

Im in the same boat as you... I kinda almost feel like if I do. I feel like I fail as a person. But also till recently the doctors didn't know if I actually had it. But I had testing done. And I infact do have epilepsy. I think I kinda understand what your meaning. If you want you can message me

It is a disability

Epilepsy is one of the harder conditions for epileptics themselves to call a disability. I know I still struggle with it. Part of the problem is that it can be controlled in most cases to one degree or another. However, Epilepsy is a ticking time bomb. Anything can set off a seizure, and there are often no warnings. Even when seizures are under control with proper treatment, they can happen.

it even hard to get a proper diagnosis. My journey started in 2019. I was told i had seizures. Then finally I got seizures free towards middle of 2020. Then all the sudden last year a week before my birthday I had one. Bjt the people I was around didn't know what it was. So on my 21st birthday I had one with my family and they new what was happening. And ive been fighting with doctors till October when I was told they are gonna send me to a specialist. So I waited. When I got there he didn't even think I had them. But he sent me for an EMU test and it was a week long EEG where they took my seizure meds away. Sure enough I have epilepsy. So now we are trying new medication. But I was getting so down. I thought it was all in my head or people was lying to me.

I have always struggled with this. I never wanted to consider Epilepsy as a disability, but at the same time it is so much harder for me to get places and do certain things than the average person because of the Epilepsy.

I do! Side affects from the medications really hit me in ways I can't explain, along with not being able to do things non-epileptics can

It is a disability even classified as one by the government if you're in America because of how bad it can affect your life