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SoFire97

Updated 1y ago

Exploring Additional Diagnoses with EDS Diagnosis

What addition diagnoses should I explore since I have an EDS diagnosis? I still have some unsolved issues so I’m trying to find avenues to explore

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wise

2y

it depends on your symptoms mostly. I will say fibromyalgia and POTS or other types of dysautonomia are VERY common comorbidities of EDS
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littlebug

2y

gastroparesis, mcas, pots/dysautonomia
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Pfeiffer

2y

I need this information, newly diagnosed here.
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luckyesch

2y

mass cell activation syndrome, pots, gastroperesis
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chronicallyfab

2y

It depends on your symptoms. Common comorbities are Dysautonomia, POTS, gastroparesis, MCAS, autoimmune dysfunctions, and hormone imbalance.
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OdeToANightingale

2y

Chiari brain malformation is a lesser known condition that commonly occurs with EDS. Chiari can cause many symptoms including headaches and migraines, nausea, numbness and tingling in extremeties, dizziness and coordination problems, vision and hearing problems, autonomic nervous system dysfunction, mood swings, neck and shoulder pain, trouble swallowing, and nerve pain- among other symptoms.
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ValidationSystem

2y

chiari is also associated with obstructive sleep apnea. I went to a neurologist first for the migraine. They thought I had a brain tumor. They didn't find one, said I had pseudo tumor cerebri and chiari then sent me for a sleep study and low and behold, I have sleep apnea. The surprising symptom of chiari I just found out about was hoarse voice. At times I sound like Marge Simpson, but I assumed it was my smoking. Well, now I know.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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