Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Faeeeriee

Updated 1y ago

New to the app, looking for advice on fibromyalgia and EDS symptoms

Hiya! I’m brand new to this app but glad to be here. I’m currently experiencing some symptoms that I don’t believe are fibromyalgia related although I’m diagnosed with fibromyalgia and was wondering if anyone could chat to me about this. I’m wondering if I could have symptoms of EDS/hEDS. I’ve been to the doctors but they fobbed me off, so I’m looking to go back soon and try and push for more help again. I use a wheelchair due to my mobility impairment.

Can you help? Connect today

avatar

KikiJay

1y

I can chat if you need to discuss anything!
avatar

Bun._.Bun

1y

Hey! I was originally diagnosed with fibromyalgia but I didn’t feel it was the correct diagnosis, I finally saw a geneticist and was diagnosed with heds. The geneticist was the first doctor to ever believe there was something more
avatar

Brokenbodyclub

1y

I’m diagnosed with forms of EDS including hEDS if you send me a chat I would love to talk and maybe help you out a bit!💗
avatar

Doglover25006

1y

I got diagnosed with fibro over 3 years ago and with hEDS in august. I’m happy to talk!
avatar

Faeeeriee

1y

You’re all super kind thank you! I’ll reach out later today as it’s stupidly early right now 💕
avatar

EllySmelly

1y

I was misdiagnosed with Fibro for a year ish before I was correctly diagnosed with EDS. Send a message if you'd like to chat!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc