Hello! I also have fibro! I feel the pain management plan pain. Mine isn’t working as well.. and I’m not sure what to do

Hi! I’m 25 and about 2 and a half years into my fibro journey the last 6 months I’ve started finding things that have helped feel free to dm me and I’m happy to chat anytime!

Hey! I’m 21 I got diagnosed around 17 and have definitely had trouble meeting younger fibro patients. My pain management plan sadly also doesn’t work. I try to manage it with diet and exercise but some days it’s so hard. Feel free to chat with me any time :))

I’m right there with you friend. My pain management rn is not helping as well as I had expected. Is your pain primarily generalized or localized?

I have had it a long time. Was only diagnosed about 4 years ago. I wAs on pain management for about 6 years. Had me on morphine, fentanyl patches and oxycodone. I stoped all narcotics five years ago. It was hell getting off those. I’m terrified of pain management now. I was recently taken off the only legal thing that helped. Meloxicam helped me so much. They won’t refill it because it’s long term side effects are too harsh. I also love when I’m on steroids. But those too have bad side effects long term. They too are hell coming off.

lidocaine patches, CBD roll-ons , CBD patches, pills and edibles, medicinal cannabis!, shower chair, using the little electric carts at the grocery store, biofreeze roll-ons, lidocaine roll-ons, a cane/walker on a really bad flare day, quitting work and getting on disability (years long process, the sooner you start the better), and most of all trying really hard not to hold myself to the old standard of wellness that I had when I was trying to keep up with others. My pace is my pace and I can’t go faster than that. Do I feel like a little old lady, totally. Do people judge me for it, absolutely. Is it worth it, completely.

Epsom salt baths, doing my best to manage my stress, finding the right amount of exercise but not too much that I’m miserable the next day, and taking naps any time I hit my wall are my biggest self care things in relation to Fibro.

I try and stay active so that my body doesn’t stiffen up! When I get stiff it can last for days at a time and It’s very painful

Stretching, moving when you can: body in motion stays in motion. I’m slowly working up to low grade weight training after a few months of routine movements. It does help. But it’s hard exhausting work. For me: elimination diet (I severely reduced inflammatory foods like sugar, dairy, red meats, high bad fats, and I can’t do any wheat) up the water intake, be consistent about meds/vitamins times of taking. Personally I’m medication resistant very quickly. I was upping dosage every month or so for the first few months of my journey. I switched out for medical marijuana, delta 8, and cbd products. I’ve used flowers, edibles and topicals and they by far are better than popping all those pills, for me. I recommend to anyone on pain pills that don’t work to check out medical marijuana if you can!

I tried cbd cream and it helps a little bit or icy hot. I’m on a med for pain right now but I’ve been having bad side effects so I’m trying to get off it and find something else.

I am on Norco, diclofenac, Lyrica, and three antidepressants (among other medications). I do not feel that my pain is under control at all, and honestly, depression has begun to take a toll on my life because I’m always in pain and I never feel like doing anything (but I force myself to do things anyway). I am in the process of trying to get weight loss surgery, because of course if you are even the slightest bit overweight, most doctors think that’s your problem. So hopefully I will be able to get the surgery and lose some weight and it will help some. I sometimes use edibles, the only problem is they make me sleepy, so I can’t use them if I want to do anything or if I’m working. Honestly, you have to do what is right for your body.

Hi! I'm middle-aged, but recently diagnosed. What level of activity are you trying to reach? I have so far found that high doses of Duloxetine help with both my depression & some of the pain, and I learned that dairy is one of my biggest food triggers. I soon learned that even the deliciousness of pizza is not worth the following painful day in bed. But I struggle still with the energy part- I'm still unemployed. I really, really, really hope you (and all the commenters) get the help you need.