Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

MatchaBunn

Updated 1y ago

Finding Hope with Chronic Disabilities

How do you find out about yourself when you’ve masked your neurodivergent behaviors for years? Coupled with a whole lot of C-PTSD, I feel like I’m weighed down by my “failures” and not seeing where I’ve succeeded. What’s a balanced way to create your narrative so that you are moving forward? I feel stuck right now, even though I’m doing my best, because I’ve had so many set backs from my health. Any advice or experiences with finding hope with chronic disabilities is welcome!

Can you help? Connect today

avatar

minime273

2y

Okay so I'm definitely no expert at any of this, but I'm going to share some thoughts and ideas from my perspectives, as an Alike. For me, learning about myself and unmasking has to be a very conscious decision. I had to try new stims and new sensory practices to see if they worked for me, and sometimes i have to remind myself that it's okay to use them. As for setbacks from other health issues, I've had some, too, and I know how much they can suck and kinda make one feel powerless. For example, my chronic pain links back to my trauma pretty heavily, so pain flares led to intrusive memories and emotional flashbacks. I just try to be kinder to myself, and I'm trying to figure out how to reprogram my brain to not be mean. Even earlier today I called myself a dummy in my head, which is mild but not ideal. I just try to correct myself and find a more constructive term. I don't know if any of that counts as advice, but at least you're not alone. We may have different struggles, but we're similar in that we struggle at all. Good luck with rediscovering yourself.
avatar

dearestdoe

2y

this exactly!!! very sound advice here re: trying not to insult yourself, my personal go-to is to call myself "silly" instead of "stupid" - its just such a funny way to put it that it cheers me up a little. ive also heard of people exaggerating about how great they are when they mess up (for example, instead of bullying myself when not happy with my art, instead bragging about how the louvre needs to come get their next masterpiece), and thats pretty fun too
avatar

Dani2022

2y

I’ve learned it’s all about curiosity and the little things. The amount of times over the last few years that I’ve been really confused by another’s healthy behavior, beliefs, relationships etc because my own have been so tainted… having the curiosity and courage to say I’m still learning, I’m re-learning myself, and asked for support was a lot. Then it’s deciding to acknowledge you’re growth even the smallest bit each day. Easier said than done, it’s hard. You can do it
avatar

TurtleBig0104

2y

You are definitely not alone. I have C-PTSD and several chronic disabilities as well, and feel really stuck. Even though people will say, you've come so far, I have such a hard time acknowledging my positive changes. So any advice from anyone would be highly appreciated by me as well.
avatar

BonnieBubblegum

2y

No advice but can absolutely commiserate! I’ve had such a hard time figuring out who I really am amidst everything
avatar

Felix69

2y

I still mask my autisum and struggle with PTSD. I find it really relaxing to draw? Is there something that relaxes you?
avatar

Bthatonebish

2y

Ughhhh thiiisss! 😥😥🙄🙄 I'm Soo struggling right now with this. It seems I have been for quite some time. It's like I can't never catch a break something always comes up to set me back. I just went thru a narcissist divorce and still having to live with the fuck so I'm having a hard time. I'm very sick and dont know my way thru life alone. I've never been alone. So idk how or why? Or even if I wanna be alone. I have nobody else. Im severly depressed. I have really bad anxiety I relapsed at the 1st of our seperation after 7yrs sober. I bounced out of it no worries. Sober now. But I can't figure me out. I feel like a loser.
avatar

Bthatonebish

2y

He calls me names. And puts me down for everything I say and do. Has been for yearsx. Thank God I bought myself a vehicle with my divorce money otherwise I'd be stuck in the country with nothing.
avatar

GeneralBonkers

2y

Start small. Try to figure out what you like and don't like. Feelings are a great teacher to learn about yourself. If you get angry or sad or whatever feeling try to further explore the feeling. Maybe try to carve out some time for yourself to explore yourself on a regular basis. Try to connect with others. NAMI (National Alliance on Mental Illness) has a lot of resources and can probably connect you with peer support groups/programs where you can connect with others like you. You could also try some mental health workbooks or something on your own if you aren't comfortable yet participating with a group

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc