Hi I have FND and for a long time I shook uncontrollably to the point I could even write my name. However, physical therapy has absolutely changed my life. I would advise you to find a good PT because although PT is painful and kind of miserable, it really makes a difference. Hang in there. I’m sorry you have FND but at the same time it’s oddly comforting to know I’m not “crazy” or it’s “all in my head” and that other people have it as well. Best of luck to you 🙌

Thank you so much for your input! I really appreciate it, I’ll be starting pt in a few weeks and I feel excited and nervous at the same time but I’m excited to start and hopefully feel a bit better! But I totally understand :( FND made me feel crazy, I felt like no one understands and I’ve never meet a person who has it yet and so it’s very comforting finding people who do have this disorder, I wish you the best💗 if you ever need to talk or anything I’m here for you!!

Thanks you too! Good luck in physical therapy. It’s a lot of hard work but it’s worth it 💪 I also struggle with meeting anyone with FND, too. I got the run around from docs telling me I was literally crazy for like a whole year so I really feel you haha.

I have FND and I also have Tourette’s. But as well as Tourette’s I have been diagnosed with functional tics, which basically means it is part of my FND. I am on aripiprazole for this but I may be stopping it soon as it doesn’t seem to be helping me much. Hope this helps! 🙂

I have FND and I developed motor tics nearly 3 years ago (it was undiagnosed at the time but played a huge role in getting the diagnosis)