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Watercolor_Diva

Updated 1y ago

Genetic Testing for hEDS

I was wondering, how many of you have done the genetic testing? I sent in my DNA sample about three weeks ago and I am awaiting results. I have been diagnosed with hEDS. I think my genetic counselor wants to make sure she isn’t missing anything.

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Phoenixwingfeather

2y

I did but they didn’t find much, I test low on their testing scale of hEDS but I have it strong enough to be a major pain in my ass and all my joints 😁
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Kat_A

2y

Me but the results weren't enough so I'm getting more... currently diagnosed with hEDS
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Berta

2y

My kids did they did not have anything else just the heds
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AraS

2y

I have - 3 times. Suuuuuper helpful.
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AraS

2y

I hope your geneticist realizes that hEDS isn’t diagnosable via DNA testing…
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Kat_A

2y

I'm diagnosed with heds, my geneticist is an expert, but he believes I may have more so testing is continuing to look for other types or crossover types

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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