If it's possible, take someone with you who can advocate for you. That's helped me. But I totally understand that sometimes that's not an option for people. So the other thing you could try is keeping a journal of your symptoms day to day, so when you take it in you have something to point to and say "look, this is real, this is how I live day in and day out" That's what I've found that's helped! It's tough to be heard, but you got this! Stay strong!

Ask around. Join fb groups for people with EDS (especially in your area) and ask who they see. Google specialists. I think they have a listing of specialists on the EDS website. Attentive doctors will also refer you to other attentive doctors.