There’s a chance they say you don’t have it… keep pushing though. It’s a long process with many false negatives

I ended up having to get genetic testing done before getting my hEDS diagnosis, but before EDS was even though of, I got tested for pretty much anything else

I initially saw a geneticist that was kind of an idiot. Although I met criteria, he was hesitant to dx me because he was afraid my hypothyroidism or vegan diet were causing my symptoms. He also thought I was having seizures. He referred me to a neurologist who told me it wasn’t seizures it was dysautonomia (and did testing for it) and confirmed that I have EDS.